The Role of an Online Community for People With a Rare Disease: Content Analysis of Messages Posted on a Primary Biliary Cirrhosis Mailinglist

BACKGROUND: This study focuses on the role of an Internet-based group for people who have an autoimmune liver disease, primary biliary cirrhosis. Primary biliary cirrhosis is a relatively rare disease, affects primarily women in their 40's and older, and is not well understood. The PBCers Organ...

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Detalles Bibliográficos
Autores principales: Lasker, Judith N, Sogolow, Ellen D, Sharim, Rebecca R
Formato: Texto
Lenguaje:English
Publicado: Gunther Eysenbach 2005
Materias:
Original Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1550634/
https://www.ncbi.nlm.nih.gov/pubmed/15829472
http://dx.doi.org/10.2196/jmir.7.1.e10

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1550634/
https://www.ncbi.nlm.nih.gov/pubmed/15829472
http://dx.doi.org/10.2196/jmir.7.1.e10

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