Ethical, Legal, and Social Issues of the Human Genome Project: What to Do with What We Know.

Since fisal year 1991, the U.S. Human Genome Project has spent $170.6 million in federal funds to help isolate genes associated with Huntington's disease, amyotrophic lateral sclerosis, neurofibromatosis types 1 and 2, myotonic dystrophy, and fragile X syndrome and to localize genes that predis...

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Detalles Bibliográficos
Autor principal: Pellerin, C
Formato: Texto
Lenguaje:English
Publicado: 1994
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1567247/
https://www.ncbi.nlm.nih.gov/pubmed/9719668
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author Pellerin, C
author_facet Pellerin, C
author_sort Pellerin, C
collection PubMed
description Since fisal year 1991, the U.S. Human Genome Project has spent $170.6 million in federal funds to help isolate genes associated with Huntington's disease, amyotrophic lateral sclerosis, neurofibromatosis types 1 and 2, myotonic dystrophy, and fragile X syndrome and to localize genes that predispose people to breast cancer, colon cancer, hypertension, diabetes, and Alzheimer's disease. Now comes the hard part. Biology's 21st century megaproject starts to look relatively manageable compared to another challenge facing the enterprise: sorting out ethical, legal, and social issues associated with using this information. "The Human Genome Project," wrote Senior Editor Barbara Jasny in the October 1 Science editorial, stretches "the limits of the technology and the limits of our ability to ethically and rationally apply genetic information to our lives."
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spelling pubmed-15672472006-09-19 Ethical, Legal, and Social Issues of the Human Genome Project: What to Do with What We Know. Pellerin, C Environ Health Perspect Research Article Since fisal year 1991, the U.S. Human Genome Project has spent $170.6 million in federal funds to help isolate genes associated with Huntington's disease, amyotrophic lateral sclerosis, neurofibromatosis types 1 and 2, myotonic dystrophy, and fragile X syndrome and to localize genes that predispose people to breast cancer, colon cancer, hypertension, diabetes, and Alzheimer's disease. Now comes the hard part. Biology's 21st century megaproject starts to look relatively manageable compared to another challenge facing the enterprise: sorting out ethical, legal, and social issues associated with using this information. "The Human Genome Project," wrote Senior Editor Barbara Jasny in the October 1 Science editorial, stretches "the limits of the technology and the limits of our ability to ethically and rationally apply genetic information to our lives." 1994-01 /pmc/articles/PMC1567247/ /pubmed/9719668 Text en
spellingShingle Research Article
Pellerin, C
Ethical, Legal, and Social Issues of the Human Genome Project: What to Do with What We Know.
title Ethical, Legal, and Social Issues of the Human Genome Project: What to Do with What We Know.
title_full Ethical, Legal, and Social Issues of the Human Genome Project: What to Do with What We Know.
title_fullStr Ethical, Legal, and Social Issues of the Human Genome Project: What to Do with What We Know.
title_full_unstemmed Ethical, Legal, and Social Issues of the Human Genome Project: What to Do with What We Know.
title_short Ethical, Legal, and Social Issues of the Human Genome Project: What to Do with What We Know.
title_sort ethical, legal, and social issues of the human genome project: what to do with what we know.
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1567247/
https://www.ncbi.nlm.nih.gov/pubmed/9719668
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