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Privacy and Ethics in Pediatric Environmental Health Research—Part I: Genetic and Prenatal Testing

The pressing need for empirically informed public policies aimed at understanding and promoting children’s health has challenged environmental scientists to modify traditional research paradigms and reevaluate their roles and obligations toward research participants. Methodologic approaches to child...

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Detalles Bibliográficos
Autor principal: Fisher, Celia B.
Formato: Texto
Lenguaje:English
Publicado: National Institute of Environmental Health Sciences 2006
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1626406/
https://www.ncbi.nlm.nih.gov/pubmed/17035153
http://dx.doi.org/10.1289/ehp.9003
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author Fisher, Celia B.
author_facet Fisher, Celia B.
author_sort Fisher, Celia B.
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description The pressing need for empirically informed public policies aimed at understanding and promoting children’s health has challenged environmental scientists to modify traditional research paradigms and reevaluate their roles and obligations toward research participants. Methodologic approaches to children’s environmental health research raise ethical challenges for which federal regulations may provide insufficient guidance. In this article I begin with a general discussion of privacy concerns and informed consent within pediatric environmental health research contexts. I then turn to specific ethical challenges associated with research on genetic determinants of environmental risk, prenatal studies and maternal privacy, and data causing inflicted insight or affecting the informational rights of third parties.
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spelling pubmed-16264062006-11-08 Privacy and Ethics in Pediatric Environmental Health Research—Part I: Genetic and Prenatal Testing Fisher, Celia B. Environ Health Perspect Research The pressing need for empirically informed public policies aimed at understanding and promoting children’s health has challenged environmental scientists to modify traditional research paradigms and reevaluate their roles and obligations toward research participants. Methodologic approaches to children’s environmental health research raise ethical challenges for which federal regulations may provide insufficient guidance. In this article I begin with a general discussion of privacy concerns and informed consent within pediatric environmental health research contexts. I then turn to specific ethical challenges associated with research on genetic determinants of environmental risk, prenatal studies and maternal privacy, and data causing inflicted insight or affecting the informational rights of third parties. National Institute of Environmental Health Sciences 2006-10 2006-08-14 /pmc/articles/PMC1626406/ /pubmed/17035153 http://dx.doi.org/10.1289/ehp.9003 Text en http://creativecommons.org/publicdomain/mark/1.0/ Publication of EHP lies in the public domain and is therefore without copyright. All text from EHP may be reprinted freely. Use of materials published in EHP should be acknowledged (for example, ?Reproduced with permission from Environmental Health Perspectives?); pertinent reference information should be provided for the article from which the material was reproduced. Articles from EHP, especially the News section, may contain photographs or illustrations copyrighted by other commercial organizations or individuals that may not be used without obtaining prior approval from the holder of the copyright.
spellingShingle Research
Fisher, Celia B.
Privacy and Ethics in Pediatric Environmental Health Research—Part I: Genetic and Prenatal Testing
title Privacy and Ethics in Pediatric Environmental Health Research—Part I: Genetic and Prenatal Testing
title_full Privacy and Ethics in Pediatric Environmental Health Research—Part I: Genetic and Prenatal Testing
title_fullStr Privacy and Ethics in Pediatric Environmental Health Research—Part I: Genetic and Prenatal Testing
title_full_unstemmed Privacy and Ethics in Pediatric Environmental Health Research—Part I: Genetic and Prenatal Testing
title_short Privacy and Ethics in Pediatric Environmental Health Research—Part I: Genetic and Prenatal Testing
title_sort privacy and ethics in pediatric environmental health research—part i: genetic and prenatal testing
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1626406/
https://www.ncbi.nlm.nih.gov/pubmed/17035153
http://dx.doi.org/10.1289/ehp.9003
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