Operationalising a model framework for consumer and community participation in health and medical research

The Consumers' Health Forum of Australia and the National Health and Medical Research Council has recently developed a Model Framework for Consumer and Community Participation in Health and Medical Research in order to better align health and medical research with community need, and improve th...

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Detalles Bibliográficos
Autores principales: Saunders, Carla, Crossing, Sally, Girgis, Afaf, Butow, Phyllis, Penman, Andrew
Formato: Texto
Lenguaje:English
Publicado: BioMed Central 2007
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1913530/
https://www.ncbi.nlm.nih.gov/pubmed/17592651
http://dx.doi.org/10.1186/1743-8462-4-13
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author Saunders, Carla
Crossing, Sally
Girgis, Afaf
Butow, Phyllis
Penman, Andrew
author_facet Saunders, Carla
Crossing, Sally
Girgis, Afaf
Butow, Phyllis
Penman, Andrew
author_sort Saunders, Carla
collection PubMed
description The Consumers' Health Forum of Australia and the National Health and Medical Research Council has recently developed a Model Framework for Consumer and Community Participation in Health and Medical Research in order to better align health and medical research with community need, and improve the impact of research. Model frameworks may have little impact on what goes on in practice unless relevant organisations actively make use of them. Philanthropic and government bodies have reported involving consumers in more meaningful or collaborative ways of late. This paper describes how a large charity organisation, which funds a significant proportion of Australian cancer research, operationalised the model framework using a unique approach demonstrating that it is both possible and reasonable for research to be considerate of public values.
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spelling pubmed-19135302007-07-10 Operationalising a model framework for consumer and community participation in health and medical research Saunders, Carla Crossing, Sally Girgis, Afaf Butow, Phyllis Penman, Andrew Aust New Zealand Health Policy Short Report The Consumers' Health Forum of Australia and the National Health and Medical Research Council has recently developed a Model Framework for Consumer and Community Participation in Health and Medical Research in order to better align health and medical research with community need, and improve the impact of research. Model frameworks may have little impact on what goes on in practice unless relevant organisations actively make use of them. Philanthropic and government bodies have reported involving consumers in more meaningful or collaborative ways of late. This paper describes how a large charity organisation, which funds a significant proportion of Australian cancer research, operationalised the model framework using a unique approach demonstrating that it is both possible and reasonable for research to be considerate of public values. BioMed Central 2007-06-26 /pmc/articles/PMC1913530/ /pubmed/17592651 http://dx.doi.org/10.1186/1743-8462-4-13 Text en Copyright © 2007 Saunders et al; licensee BioMed Central Ltd. http://creativecommons.org/licenses/by/2.0 This is an Open Access article distributed under the terms of the Creative Commons Attribution License ( (http://creativecommons.org/licenses/by/2.0) ), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Short Report
Saunders, Carla
Crossing, Sally
Girgis, Afaf
Butow, Phyllis
Penman, Andrew
Operationalising a model framework for consumer and community participation in health and medical research
title Operationalising a model framework for consumer and community participation in health and medical research
title_full Operationalising a model framework for consumer and community participation in health and medical research
title_fullStr Operationalising a model framework for consumer and community participation in health and medical research
title_full_unstemmed Operationalising a model framework for consumer and community participation in health and medical research
title_short Operationalising a model framework for consumer and community participation in health and medical research
title_sort operationalising a model framework for consumer and community participation in health and medical research
topic Short Report
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1913530/
https://www.ncbi.nlm.nih.gov/pubmed/17592651
http://dx.doi.org/10.1186/1743-8462-4-13
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