Operationalising a model framework for consumer and community participation in health and medical research
The Consumers' Health Forum of Australia and the National Health and Medical Research Council has recently developed a Model Framework for Consumer and Community Participation in Health and Medical Research in order to better align health and medical research with community need, and improve th...
Autores principales: | , , , , |
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Formato: | Texto |
Lenguaje: | English |
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BioMed Central
2007
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Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1913530/ https://www.ncbi.nlm.nih.gov/pubmed/17592651 http://dx.doi.org/10.1186/1743-8462-4-13 |
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author | Saunders, Carla Crossing, Sally Girgis, Afaf Butow, Phyllis Penman, Andrew |
author_facet | Saunders, Carla Crossing, Sally Girgis, Afaf Butow, Phyllis Penman, Andrew |
author_sort | Saunders, Carla |
collection | PubMed |
description | The Consumers' Health Forum of Australia and the National Health and Medical Research Council has recently developed a Model Framework for Consumer and Community Participation in Health and Medical Research in order to better align health and medical research with community need, and improve the impact of research. Model frameworks may have little impact on what goes on in practice unless relevant organisations actively make use of them. Philanthropic and government bodies have reported involving consumers in more meaningful or collaborative ways of late. This paper describes how a large charity organisation, which funds a significant proportion of Australian cancer research, operationalised the model framework using a unique approach demonstrating that it is both possible and reasonable for research to be considerate of public values. |
format | Text |
id | pubmed-1913530 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2007 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-19135302007-07-10 Operationalising a model framework for consumer and community participation in health and medical research Saunders, Carla Crossing, Sally Girgis, Afaf Butow, Phyllis Penman, Andrew Aust New Zealand Health Policy Short Report The Consumers' Health Forum of Australia and the National Health and Medical Research Council has recently developed a Model Framework for Consumer and Community Participation in Health and Medical Research in order to better align health and medical research with community need, and improve the impact of research. Model frameworks may have little impact on what goes on in practice unless relevant organisations actively make use of them. Philanthropic and government bodies have reported involving consumers in more meaningful or collaborative ways of late. This paper describes how a large charity organisation, which funds a significant proportion of Australian cancer research, operationalised the model framework using a unique approach demonstrating that it is both possible and reasonable for research to be considerate of public values. BioMed Central 2007-06-26 /pmc/articles/PMC1913530/ /pubmed/17592651 http://dx.doi.org/10.1186/1743-8462-4-13 Text en Copyright © 2007 Saunders et al; licensee BioMed Central Ltd. http://creativecommons.org/licenses/by/2.0 This is an Open Access article distributed under the terms of the Creative Commons Attribution License ( (http://creativecommons.org/licenses/by/2.0) ), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Short Report Saunders, Carla Crossing, Sally Girgis, Afaf Butow, Phyllis Penman, Andrew Operationalising a model framework for consumer and community participation in health and medical research |
title | Operationalising a model framework for consumer and community participation in health and medical research |
title_full | Operationalising a model framework for consumer and community participation in health and medical research |
title_fullStr | Operationalising a model framework for consumer and community participation in health and medical research |
title_full_unstemmed | Operationalising a model framework for consumer and community participation in health and medical research |
title_short | Operationalising a model framework for consumer and community participation in health and medical research |
title_sort | operationalising a model framework for consumer and community participation in health and medical research |
topic | Short Report |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1913530/ https://www.ncbi.nlm.nih.gov/pubmed/17592651 http://dx.doi.org/10.1186/1743-8462-4-13 |
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