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Quality of life in couples living with Huntington’s disease: the role of patients’ and partners’ illness perceptions

Research suggests that chronically ill patients and their partners perceive illness differently, and that these differences have a negative impact on patients’ quality of life (QoL). This study assessed whether illness perceptions of patients with Huntington’s disease (HD) differ from those of their...

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Detalles Bibliográficos
Autores principales: Kaptein, A. A., Scharloo, M., Helder, D. I., Snoei, L., van Kempen, G. M. J., Weinman, J., van Houwelingen, J. C., Roos, R. A. C.
Formato: Texto
Lenguaje:English
Publicado: Kluwer Academic Publishers 2007
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1915604/
https://www.ncbi.nlm.nih.gov/pubmed/17375373
http://dx.doi.org/10.1007/s11136-007-9194-4
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author Kaptein, A. A.
Scharloo, M.
Helder, D. I.
Snoei, L.
van Kempen, G. M. J.
Weinman, J.
van Houwelingen, J. C.
Roos, R. A. C.
author_facet Kaptein, A. A.
Scharloo, M.
Helder, D. I.
Snoei, L.
van Kempen, G. M. J.
Weinman, J.
van Houwelingen, J. C.
Roos, R. A. C.
author_sort Kaptein, A. A.
collection PubMed
description Research suggests that chronically ill patients and their partners perceive illness differently, and that these differences have a negative impact on patients’ quality of life (QoL). This study assessed whether illness perceptions of patients with Huntington’s disease (HD) differ from those of their partners, and examined whether spousal illness perceptions are important for the QoL of the couples (n = 51 couples). Partners reported that their HD-patient spouses suffered more symptoms and experienced less control than the patients themselves reported. Illness perceptions of patients and partners correlated significantly with patient QoL. Partners’ beliefs in a long duration of the patients’ illness and less belief in cure, were associated with patient vitality scores. Suggestions for future research emphasize the importance of qualitative research approaches in combination with cognitive-behavioural approaches.
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spelling pubmed-19156042007-07-13 Quality of life in couples living with Huntington’s disease: the role of patients’ and partners’ illness perceptions Kaptein, A. A. Scharloo, M. Helder, D. I. Snoei, L. van Kempen, G. M. J. Weinman, J. van Houwelingen, J. C. Roos, R. A. C. Qual Life Res Original Paper Research suggests that chronically ill patients and their partners perceive illness differently, and that these differences have a negative impact on patients’ quality of life (QoL). This study assessed whether illness perceptions of patients with Huntington’s disease (HD) differ from those of their partners, and examined whether spousal illness perceptions are important for the QoL of the couples (n = 51 couples). Partners reported that their HD-patient spouses suffered more symptoms and experienced less control than the patients themselves reported. Illness perceptions of patients and partners correlated significantly with patient QoL. Partners’ beliefs in a long duration of the patients’ illness and less belief in cure, were associated with patient vitality scores. Suggestions for future research emphasize the importance of qualitative research approaches in combination with cognitive-behavioural approaches. Kluwer Academic Publishers 2007-03-21 2007-06 /pmc/articles/PMC1915604/ /pubmed/17375373 http://dx.doi.org/10.1007/s11136-007-9194-4 Text en © Springer Science+Business Media B.V. 2007
spellingShingle Original Paper
Kaptein, A. A.
Scharloo, M.
Helder, D. I.
Snoei, L.
van Kempen, G. M. J.
Weinman, J.
van Houwelingen, J. C.
Roos, R. A. C.
Quality of life in couples living with Huntington’s disease: the role of patients’ and partners’ illness perceptions
title Quality of life in couples living with Huntington’s disease: the role of patients’ and partners’ illness perceptions
title_full Quality of life in couples living with Huntington’s disease: the role of patients’ and partners’ illness perceptions
title_fullStr Quality of life in couples living with Huntington’s disease: the role of patients’ and partners’ illness perceptions
title_full_unstemmed Quality of life in couples living with Huntington’s disease: the role of patients’ and partners’ illness perceptions
title_short Quality of life in couples living with Huntington’s disease: the role of patients’ and partners’ illness perceptions
title_sort quality of life in couples living with huntington’s disease: the role of patients’ and partners’ illness perceptions
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1915604/
https://www.ncbi.nlm.nih.gov/pubmed/17375373
http://dx.doi.org/10.1007/s11136-007-9194-4
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