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Developing a web-based information resource for palliative care: an action-research inspired approach
BACKGROUND: General Practitioners and community nurses rely on easily accessible, evidence-based online information to guide practice. To date, the methods that underpin the scoping of user-identified online information needs in palliative care have remained under-explored. This paper describes the...
Autores principales: | , , , , , , |
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Formato: | Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2007
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2194759/ https://www.ncbi.nlm.nih.gov/pubmed/17854509 http://dx.doi.org/10.1186/1472-6947-7-26 |
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author | Street, Annette F Swift, Kathleen Annells, Merilyn Woodruff, Roger Gliddon, Terry Oakley, Anne Ottman, Goetz |
author_facet | Street, Annette F Swift, Kathleen Annells, Merilyn Woodruff, Roger Gliddon, Terry Oakley, Anne Ottman, Goetz |
author_sort | Street, Annette F |
collection | PubMed |
description | BACKGROUND: General Practitioners and community nurses rely on easily accessible, evidence-based online information to guide practice. To date, the methods that underpin the scoping of user-identified online information needs in palliative care have remained under-explored. This paper describes the benefits and challenges of a collaborative approach involving users and experts that informed the first stage of the development of a palliative care website [1]. METHOD: The action research-inspired methodology included a panel assessment of an existing palliative care website based in Victoria, Australia; a pre-development survey (n = 197) scoping potential audiences and palliative care information needs; working parties conducting a needs analysis about necessary information content for a redeveloped website targeting health professionals and caregivers/patients; an iterative evaluation process involving users and experts; as well as a final evaluation survey (n = 166). RESULTS: Involving users in the identification of content and links for a palliative care website is time-consuming and requires initial resources, strong networking skills and commitment. However, user participation provided crucial information that led to the widened the scope of the website audience and guided the development and testing of the website. The needs analysis underpinning the project suggests that palliative care peak bodies need to address three distinct audiences (clinicians, allied health professionals as well as patients and their caregivers). CONCLUSION: Web developers should pay close attention to the content, language, and accessibility needs of these groups. Given the substantial cost associated with the maintenance of authoritative health information sites, the paper proposes a more collaborative development in which users can be engaged in the definition of content to ensure relevance and responsiveness, and to eliminate unnecessary detail. Access to volunteer networks forms an integral part of such an approach. |
format | Text |
id | pubmed-2194759 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2007 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-21947592008-01-13 Developing a web-based information resource for palliative care: an action-research inspired approach Street, Annette F Swift, Kathleen Annells, Merilyn Woodruff, Roger Gliddon, Terry Oakley, Anne Ottman, Goetz BMC Med Inform Decis Mak Research Article BACKGROUND: General Practitioners and community nurses rely on easily accessible, evidence-based online information to guide practice. To date, the methods that underpin the scoping of user-identified online information needs in palliative care have remained under-explored. This paper describes the benefits and challenges of a collaborative approach involving users and experts that informed the first stage of the development of a palliative care website [1]. METHOD: The action research-inspired methodology included a panel assessment of an existing palliative care website based in Victoria, Australia; a pre-development survey (n = 197) scoping potential audiences and palliative care information needs; working parties conducting a needs analysis about necessary information content for a redeveloped website targeting health professionals and caregivers/patients; an iterative evaluation process involving users and experts; as well as a final evaluation survey (n = 166). RESULTS: Involving users in the identification of content and links for a palliative care website is time-consuming and requires initial resources, strong networking skills and commitment. However, user participation provided crucial information that led to the widened the scope of the website audience and guided the development and testing of the website. The needs analysis underpinning the project suggests that palliative care peak bodies need to address three distinct audiences (clinicians, allied health professionals as well as patients and their caregivers). CONCLUSION: Web developers should pay close attention to the content, language, and accessibility needs of these groups. Given the substantial cost associated with the maintenance of authoritative health information sites, the paper proposes a more collaborative development in which users can be engaged in the definition of content to ensure relevance and responsiveness, and to eliminate unnecessary detail. Access to volunteer networks forms an integral part of such an approach. BioMed Central 2007-09-14 /pmc/articles/PMC2194759/ /pubmed/17854509 http://dx.doi.org/10.1186/1472-6947-7-26 Text en Copyright © 2007 Street et al; licensee BioMed Central Ltd. http://creativecommons.org/licenses/by/2.0 This is an Open Access article distributed under the terms of the Creative Commons Attribution License ( (http://creativecommons.org/licenses/by/2.0) ), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Research Article Street, Annette F Swift, Kathleen Annells, Merilyn Woodruff, Roger Gliddon, Terry Oakley, Anne Ottman, Goetz Developing a web-based information resource for palliative care: an action-research inspired approach |
title | Developing a web-based information resource for palliative care: an action-research inspired approach |
title_full | Developing a web-based information resource for palliative care: an action-research inspired approach |
title_fullStr | Developing a web-based information resource for palliative care: an action-research inspired approach |
title_full_unstemmed | Developing a web-based information resource for palliative care: an action-research inspired approach |
title_short | Developing a web-based information resource for palliative care: an action-research inspired approach |
title_sort | developing a web-based information resource for palliative care: an action-research inspired approach |
topic | Research Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2194759/ https://www.ncbi.nlm.nih.gov/pubmed/17854509 http://dx.doi.org/10.1186/1472-6947-7-26 |
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