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The governance of genomic information: will it come of age?

The completion of the Human Genome Project has opened up unprecedented possibilities in healthcare, but also ethical and social dilemmas in terms of how these can be achieved. Genomic information can be seen as a "global public good" (GPG), in that it is represented by knowledge in the pub...

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Detalles Bibliográficos
Autor principal: Langlois, Adèle
Formato: Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2006
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2291236/
https://www.ncbi.nlm.nih.gov/pubmed/18401462
http://dx.doi.org/10.1186/1746-5354-2-3-49
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author Langlois, Adèle
author_facet Langlois, Adèle
author_sort Langlois, Adèle
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description The completion of the Human Genome Project has opened up unprecedented possibilities in healthcare, but also ethical and social dilemmas in terms of how these can be achieved. Genomic information can be seen as a "global public good" (GPG), in that it is represented by knowledge in the public domain and across national boundaries. Lack of investment, infrastructure and expertise in developing countries means that they are unable to take advantage of these GPG characteristics to address their health needs, fuelling fears of a growing "genomics divide". Some have suggested an international knowledge sharing and capacity building network, a Global Genomics Initiative, as a means to harness the potential of genomics to reduce inequalities in health between North and South. Three UNESCO declarations also call for cooperation between developed and developing countries in genomics research and science and technology in general. Using international relations theories around global governance and networks as a conceptual framework, this paper examines whether these initiatives are likely to succeed in providing effective governance of genomics.
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spelling pubmed-22912362008-04-09 The governance of genomic information: will it come of age? Langlois, Adèle Genom Soc Policy Special Issue Article The completion of the Human Genome Project has opened up unprecedented possibilities in healthcare, but also ethical and social dilemmas in terms of how these can be achieved. Genomic information can be seen as a "global public good" (GPG), in that it is represented by knowledge in the public domain and across national boundaries. Lack of investment, infrastructure and expertise in developing countries means that they are unable to take advantage of these GPG characteristics to address their health needs, fuelling fears of a growing "genomics divide". Some have suggested an international knowledge sharing and capacity building network, a Global Genomics Initiative, as a means to harness the potential of genomics to reduce inequalities in health between North and South. Three UNESCO declarations also call for cooperation between developed and developing countries in genomics research and science and technology in general. Using international relations theories around global governance and networks as a conceptual framework, this paper examines whether these initiatives are likely to succeed in providing effective governance of genomics. Springer Berlin Heidelberg 2006-12-15 /pmc/articles/PMC2291236/ /pubmed/18401462 http://dx.doi.org/10.1186/1746-5354-2-3-49 Text en © ESRC Genomics Network 2006
spellingShingle Special Issue Article
Langlois, Adèle
The governance of genomic information: will it come of age?
title The governance of genomic information: will it come of age?
title_full The governance of genomic information: will it come of age?
title_fullStr The governance of genomic information: will it come of age?
title_full_unstemmed The governance of genomic information: will it come of age?
title_short The governance of genomic information: will it come of age?
title_sort governance of genomic information: will it come of age?
topic Special Issue Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2291236/
https://www.ncbi.nlm.nih.gov/pubmed/18401462
http://dx.doi.org/10.1186/1746-5354-2-3-49
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