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Choosing embryos: ethical complexity and relational autonomy in staff accounts of PGD

The technique of preimplantation genetic diagnosis (PGD) is commonly explained as a way of checking the genes of embryos produced by IVF for serious genetic diseases. However, complex accounts of this technique emerged during ethics discussion groups held for PGD staff. These form part of a study ex...

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Detalles Bibliográficos
Autores principales: Ehrich, Kathryn, Williams, Clare, Farsides, Bobbie, Sandall, Jane, Scott, Rosamund
Formato: Texto
Lenguaje:English
Publicado: Blackwell Publishing Ltd 2007
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2440558/
https://www.ncbi.nlm.nih.gov/pubmed/18092985
http://dx.doi.org/10.1111/j.1467-9566.2007.01021.x
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author Ehrich, Kathryn
Williams, Clare
Farsides, Bobbie
Sandall, Jane
Scott, Rosamund
author_facet Ehrich, Kathryn
Williams, Clare
Farsides, Bobbie
Sandall, Jane
Scott, Rosamund
author_sort Ehrich, Kathryn
collection PubMed
description The technique of preimplantation genetic diagnosis (PGD) is commonly explained as a way of checking the genes of embryos produced by IVF for serious genetic diseases. However, complex accounts of this technique emerged during ethics discussion groups held for PGD staff. These form part of a study exploring the social processes, meanings and institutions that frame and produce ‘ethical problems’ for practitioners, scientists and others working in the specialty of PGD in the UK. Two ‘grey areas’ raised by staff are discussed in terms of how far staff are, or in the future may be, able to support autonomous choices of women/couples: accepting ‘carrier’ embryos within the goal of creating a ‘healthy’ child; and sex selection of embryos for social reasons. These grey areas challenged the staff's resolve to offer individual informed choice, in the face of their awareness of possible collective social effects that might ensue from individual choices. We therefore argue that these new forms of choice pose a challenge to conventional models of individual autonomy used in UK genetic and reproductive counselling, and that ‘relational autonomy’ may be a more suitable ethical model to describe the ethical principles being drawn on by staff working in this area.
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spelling pubmed-24405582008-07-01 Choosing embryos: ethical complexity and relational autonomy in staff accounts of PGD Ehrich, Kathryn Williams, Clare Farsides, Bobbie Sandall, Jane Scott, Rosamund Sociol Health Illn Original Articles The technique of preimplantation genetic diagnosis (PGD) is commonly explained as a way of checking the genes of embryos produced by IVF for serious genetic diseases. However, complex accounts of this technique emerged during ethics discussion groups held for PGD staff. These form part of a study exploring the social processes, meanings and institutions that frame and produce ‘ethical problems’ for practitioners, scientists and others working in the specialty of PGD in the UK. Two ‘grey areas’ raised by staff are discussed in terms of how far staff are, or in the future may be, able to support autonomous choices of women/couples: accepting ‘carrier’ embryos within the goal of creating a ‘healthy’ child; and sex selection of embryos for social reasons. These grey areas challenged the staff's resolve to offer individual informed choice, in the face of their awareness of possible collective social effects that might ensue from individual choices. We therefore argue that these new forms of choice pose a challenge to conventional models of individual autonomy used in UK genetic and reproductive counselling, and that ‘relational autonomy’ may be a more suitable ethical model to describe the ethical principles being drawn on by staff working in this area. Blackwell Publishing Ltd 2007-11 /pmc/articles/PMC2440558/ /pubmed/18092985 http://dx.doi.org/10.1111/j.1467-9566.2007.01021.x Text en © 2007 The Authors Journal compilation © 2007 Foundation for the Sociology of Health & Illness/Blackwell Publishing Ltd
spellingShingle Original Articles
Ehrich, Kathryn
Williams, Clare
Farsides, Bobbie
Sandall, Jane
Scott, Rosamund
Choosing embryos: ethical complexity and relational autonomy in staff accounts of PGD
title Choosing embryos: ethical complexity and relational autonomy in staff accounts of PGD
title_full Choosing embryos: ethical complexity and relational autonomy in staff accounts of PGD
title_fullStr Choosing embryos: ethical complexity and relational autonomy in staff accounts of PGD
title_full_unstemmed Choosing embryos: ethical complexity and relational autonomy in staff accounts of PGD
title_short Choosing embryos: ethical complexity and relational autonomy in staff accounts of PGD
title_sort choosing embryos: ethical complexity and relational autonomy in staff accounts of pgd
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2440558/
https://www.ncbi.nlm.nih.gov/pubmed/18092985
http://dx.doi.org/10.1111/j.1467-9566.2007.01021.x
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