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Physical function assessment tools in pediatric rheumatology

Pediatric rheumatic diseases with predominant musculoskeletal involvement such as juvenile idiopathic arthritis (JIA) and juvenile dermatomyositis(JDM) can cause considerable physical functional impairment and significantly affect the children's quality of life (QOL). Physical function, QOL, he...

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Autores principales: Moorthy, Lakshmi Nandini, Peterson, Margaret GE, Harrison, Melanie J, Onel, Karen B, Lehman, Thomas JA
Formato: Texto
Lenguaje:English
Publicado: BioMed Central 2008
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2440744/
https://www.ncbi.nlm.nih.gov/pubmed/18533038
http://dx.doi.org/10.1186/1546-0096-6-9
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author Moorthy, Lakshmi Nandini
Peterson, Margaret GE
Harrison, Melanie J
Onel, Karen B
Lehman, Thomas JA
author_facet Moorthy, Lakshmi Nandini
Peterson, Margaret GE
Harrison, Melanie J
Onel, Karen B
Lehman, Thomas JA
author_sort Moorthy, Lakshmi Nandini
collection PubMed
description Pediatric rheumatic diseases with predominant musculoskeletal involvement such as juvenile idiopathic arthritis (JIA) and juvenile dermatomyositis(JDM) can cause considerable physical functional impairment and significantly affect the children's quality of life (QOL). Physical function, QOL, health-related QOL (HRQOL) and health status are personal constructs used as outcomes to estimate the impact of these diseases and often used as proxies for each other. The chronic, fluctuating nature of these diseases differs within and between patients, and complicates the measurement of these outcomes. In children, their growing needs and expectations, limited use of age-specific questionnaires, and the use of proxy respondents further influences this evaluation. This article will briefly review the different constructs inclusive of and related to physical function, and the scales used for measuring them. An understanding of these instruments will enable assessment of functional outcome in clinical studies of children with rheumatic diseases, measure the impact of the disease and treatments on their lives, and guide us in formulating appropriate interventions.
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spelling pubmed-24407442008-06-27 Physical function assessment tools in pediatric rheumatology Moorthy, Lakshmi Nandini Peterson, Margaret GE Harrison, Melanie J Onel, Karen B Lehman, Thomas JA Pediatr Rheumatol Online J Review Pediatric rheumatic diseases with predominant musculoskeletal involvement such as juvenile idiopathic arthritis (JIA) and juvenile dermatomyositis(JDM) can cause considerable physical functional impairment and significantly affect the children's quality of life (QOL). Physical function, QOL, health-related QOL (HRQOL) and health status are personal constructs used as outcomes to estimate the impact of these diseases and often used as proxies for each other. The chronic, fluctuating nature of these diseases differs within and between patients, and complicates the measurement of these outcomes. In children, their growing needs and expectations, limited use of age-specific questionnaires, and the use of proxy respondents further influences this evaluation. This article will briefly review the different constructs inclusive of and related to physical function, and the scales used for measuring them. An understanding of these instruments will enable assessment of functional outcome in clinical studies of children with rheumatic diseases, measure the impact of the disease and treatments on their lives, and guide us in formulating appropriate interventions. BioMed Central 2008-06-04 /pmc/articles/PMC2440744/ /pubmed/18533038 http://dx.doi.org/10.1186/1546-0096-6-9 Text en Copyright © 2008 Moorthy et al; licensee BioMed Central Ltd. http://creativecommons.org/licenses/by/2.0 This is an Open Access article distributed under the terms of the Creative Commons Attribution License ( (http://creativecommons.org/licenses/by/2.0) ), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Review
Moorthy, Lakshmi Nandini
Peterson, Margaret GE
Harrison, Melanie J
Onel, Karen B
Lehman, Thomas JA
Physical function assessment tools in pediatric rheumatology
title Physical function assessment tools in pediatric rheumatology
title_full Physical function assessment tools in pediatric rheumatology
title_fullStr Physical function assessment tools in pediatric rheumatology
title_full_unstemmed Physical function assessment tools in pediatric rheumatology
title_short Physical function assessment tools in pediatric rheumatology
title_sort physical function assessment tools in pediatric rheumatology
topic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2440744/
https://www.ncbi.nlm.nih.gov/pubmed/18533038
http://dx.doi.org/10.1186/1546-0096-6-9
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