Cargando…

Legal aspects of genetic information.

The federally funded Human Genome Initiative will lead to the development of new capabilities to learn about an individual's genetic status. Legal issues are raised concerning patients' and other parties' access to that information. This article discusses the effect of existing statut...

Descripción completa

Detalles Bibliográficos
Autor principal: Andrews, L. B.
Formato: Texto
Lenguaje:English
Publicado: Yale Journal of Biology and Medicine 1991
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2589440/
https://www.ncbi.nlm.nih.gov/pubmed/1897258
Descripción
Sumario:The federally funded Human Genome Initiative will lead to the development of new capabilities to learn about an individual's genetic status. Legal issues are raised concerning patients' and other parties' access to that information. This article discusses the effect of existing statutes and case law on three pivotal questions: To what sort of information are people entitled? What control should people have over their genetic information? Do people have a right to refuse genetic information? The article emphasizes that the law protects a patient's right to obtain or refuse genetic information about oneself, as well as the right to control the dissemination of that information to others.