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Legal aspects of genetic information.

The federally funded Human Genome Initiative will lead to the development of new capabilities to learn about an individual's genetic status. Legal issues are raised concerning patients' and other parties' access to that information. This article discusses the effect of existing statut...

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Detalles Bibliográficos
Autor principal: Andrews, L. B.
Formato: Texto
Lenguaje:English
Publicado: Yale Journal of Biology and Medicine 1991
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2589440/
https://www.ncbi.nlm.nih.gov/pubmed/1897258
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author Andrews, L. B.
author_facet Andrews, L. B.
author_sort Andrews, L. B.
collection PubMed
description The federally funded Human Genome Initiative will lead to the development of new capabilities to learn about an individual's genetic status. Legal issues are raised concerning patients' and other parties' access to that information. This article discusses the effect of existing statutes and case law on three pivotal questions: To what sort of information are people entitled? What control should people have over their genetic information? Do people have a right to refuse genetic information? The article emphasizes that the law protects a patient's right to obtain or refuse genetic information about oneself, as well as the right to control the dissemination of that information to others.
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spelling pubmed-25894402008-11-28 Legal aspects of genetic information. Andrews, L. B. Yale J Biol Med Research Article The federally funded Human Genome Initiative will lead to the development of new capabilities to learn about an individual's genetic status. Legal issues are raised concerning patients' and other parties' access to that information. This article discusses the effect of existing statutes and case law on three pivotal questions: To what sort of information are people entitled? What control should people have over their genetic information? Do people have a right to refuse genetic information? The article emphasizes that the law protects a patient's right to obtain or refuse genetic information about oneself, as well as the right to control the dissemination of that information to others. Yale Journal of Biology and Medicine 1991 /pmc/articles/PMC2589440/ /pubmed/1897258 Text en
spellingShingle Research Article
Andrews, L. B.
Legal aspects of genetic information.
title Legal aspects of genetic information.
title_full Legal aspects of genetic information.
title_fullStr Legal aspects of genetic information.
title_full_unstemmed Legal aspects of genetic information.
title_short Legal aspects of genetic information.
title_sort legal aspects of genetic information.
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2589440/
https://www.ncbi.nlm.nih.gov/pubmed/1897258
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