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Web 2.0 systems supporting childhood chronic disease management: A pattern language representation of a general architecture

BACKGROUND: Chronic disease management is a global health concern. By the time they reach adolescence, 10–15% of all children live with a chronic disease. The role of educational interventions in facilitating adaptation to chronic disease is receiving growing recognition, and current care policies a...

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Autores principales: Timpka, Toomas, Eriksson, Henrik, Ludvigsson, Johnny, Ekberg, Joakim, Nordfeldt, Sam, Hanberger, Lena
Formato: Texto
Lenguaje:English
Publicado: BioMed Central 2008
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2627839/
https://www.ncbi.nlm.nih.gov/pubmed/19040738
http://dx.doi.org/10.1186/1472-6947-8-54
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author Timpka, Toomas
Eriksson, Henrik
Ludvigsson, Johnny
Ekberg, Joakim
Nordfeldt, Sam
Hanberger, Lena
author_facet Timpka, Toomas
Eriksson, Henrik
Ludvigsson, Johnny
Ekberg, Joakim
Nordfeldt, Sam
Hanberger, Lena
author_sort Timpka, Toomas
collection PubMed
description BACKGROUND: Chronic disease management is a global health concern. By the time they reach adolescence, 10–15% of all children live with a chronic disease. The role of educational interventions in facilitating adaptation to chronic disease is receiving growing recognition, and current care policies advocate greater involvement of patients in self-care. Web 2.0 is an umbrella term for new collaborative Internet services characterized by user participation in developing and managing content. Key elements include Really Simple Syndication (RSS) to rapidly disseminate awareness of new information; weblogs (blogs) to describe new trends, wikis to share knowledge, and podcasts to make information available on personal media players. This study addresses the potential to develop Web 2.0 services for young persons with a chronic disease. It is acknowledged that the management of childhood chronic disease is based on interplay between initiatives and resources on the part of patients, relatives, and health care professionals, and where the balance shifts over time to the patients and their families. METHODS: Participatory action research was used to stepwise define a design specification in the form of a pattern language. Support for children diagnosed with diabetes Type 1 was used as the example area. Each individual design pattern was determined graphically using card sorting methods, and textually in the form Title, Context, Problem, Solution, Examples and References. Application references were included at the lowest level in the graphical overview in the pattern language but not specified in detail in the textual descriptions. RESULTS: The design patterns are divided into functional and non-functional design elements, and formulated at the levels of organizational, system, and application design. The design elements specify access to materials for development of the competences needed for chronic disease management in specific community settings, endorsement of self-learning through online peer-to-peer communication, and systematic accreditation and evaluation of materials and processes. CONCLUSION: The use of design patterns allows representing the core design elements of a Web 2.0 system upon which an 'ecological' development of content respecting these constraints can be built. Future research should include evaluations of Web 2.0 systems implemented according to the architecture in practice settings.
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spelling pubmed-26278392009-01-17 Web 2.0 systems supporting childhood chronic disease management: A pattern language representation of a general architecture Timpka, Toomas Eriksson, Henrik Ludvigsson, Johnny Ekberg, Joakim Nordfeldt, Sam Hanberger, Lena BMC Med Inform Decis Mak Research Article BACKGROUND: Chronic disease management is a global health concern. By the time they reach adolescence, 10–15% of all children live with a chronic disease. The role of educational interventions in facilitating adaptation to chronic disease is receiving growing recognition, and current care policies advocate greater involvement of patients in self-care. Web 2.0 is an umbrella term for new collaborative Internet services characterized by user participation in developing and managing content. Key elements include Really Simple Syndication (RSS) to rapidly disseminate awareness of new information; weblogs (blogs) to describe new trends, wikis to share knowledge, and podcasts to make information available on personal media players. This study addresses the potential to develop Web 2.0 services for young persons with a chronic disease. It is acknowledged that the management of childhood chronic disease is based on interplay between initiatives and resources on the part of patients, relatives, and health care professionals, and where the balance shifts over time to the patients and their families. METHODS: Participatory action research was used to stepwise define a design specification in the form of a pattern language. Support for children diagnosed with diabetes Type 1 was used as the example area. Each individual design pattern was determined graphically using card sorting methods, and textually in the form Title, Context, Problem, Solution, Examples and References. Application references were included at the lowest level in the graphical overview in the pattern language but not specified in detail in the textual descriptions. RESULTS: The design patterns are divided into functional and non-functional design elements, and formulated at the levels of organizational, system, and application design. The design elements specify access to materials for development of the competences needed for chronic disease management in specific community settings, endorsement of self-learning through online peer-to-peer communication, and systematic accreditation and evaluation of materials and processes. CONCLUSION: The use of design patterns allows representing the core design elements of a Web 2.0 system upon which an 'ecological' development of content respecting these constraints can be built. Future research should include evaluations of Web 2.0 systems implemented according to the architecture in practice settings. BioMed Central 2008-11-28 /pmc/articles/PMC2627839/ /pubmed/19040738 http://dx.doi.org/10.1186/1472-6947-8-54 Text en Copyright © 2008 Timpka et al; licensee BioMed Central Ltd. http://creativecommons.org/licenses/by/2.0 This is an Open Access article distributed under the terms of the Creative Commons Attribution License ( (http://creativecommons.org/licenses/by/2.0) ), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Research Article
Timpka, Toomas
Eriksson, Henrik
Ludvigsson, Johnny
Ekberg, Joakim
Nordfeldt, Sam
Hanberger, Lena
Web 2.0 systems supporting childhood chronic disease management: A pattern language representation of a general architecture
title Web 2.0 systems supporting childhood chronic disease management: A pattern language representation of a general architecture
title_full Web 2.0 systems supporting childhood chronic disease management: A pattern language representation of a general architecture
title_fullStr Web 2.0 systems supporting childhood chronic disease management: A pattern language representation of a general architecture
title_full_unstemmed Web 2.0 systems supporting childhood chronic disease management: A pattern language representation of a general architecture
title_short Web 2.0 systems supporting childhood chronic disease management: A pattern language representation of a general architecture
title_sort web 2.0 systems supporting childhood chronic disease management: a pattern language representation of a general architecture
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2627839/
https://www.ncbi.nlm.nih.gov/pubmed/19040738
http://dx.doi.org/10.1186/1472-6947-8-54
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