Cargando…

Two cheers for GINA?

The Genetic Information Nondiscrimination Act of 2008 (GINA) was recently enacted in the United States. Its supporters have applauded the passage of GINA, and they hope that it will alleviate public fear about genetic discrimination and facilitate genetic testing and participation in genetic researc...

Descripción completa

Detalles Bibliográficos
Autores principales: McGuire, Amy L, Majumder, Mary Anderlik
Formato: Texto
Lenguaje:English
Publicado: BioMed Central 2009
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2651591/
https://www.ncbi.nlm.nih.gov/pubmed/19348693
http://dx.doi.org/10.1186/gm6
_version_ 1782165164787761152
author McGuire, Amy L
Majumder, Mary Anderlik
author_facet McGuire, Amy L
Majumder, Mary Anderlik
author_sort McGuire, Amy L
collection PubMed
description The Genetic Information Nondiscrimination Act of 2008 (GINA) was recently enacted in the United States. Its supporters have applauded the passage of GINA, and they hope that it will alleviate public fear about genetic discrimination and facilitate genetic testing and participation in genetic research. Critics worry that GINA does not provide adequate protection because it fails to address discrimination on the basis of non-genetic health-related information, and it only regulates the use of genetic information in health insurance and employment. Despite these limitations, GINA represents a major step forward in US policy. Additional research is needed to assess the impact of GINA on industry practice and public opinion. In the mean time, education about GINA and its limitations can help individuals make more informed decisions about genetic testing and participation in genetic research.
format Text
id pubmed-2651591
institution National Center for Biotechnology Information
language English
publishDate 2009
publisher BioMed Central
record_format MEDLINE/PubMed
spelling pubmed-26515912009-03-09 Two cheers for GINA? McGuire, Amy L Majumder, Mary Anderlik Genome Med Commentary The Genetic Information Nondiscrimination Act of 2008 (GINA) was recently enacted in the United States. Its supporters have applauded the passage of GINA, and they hope that it will alleviate public fear about genetic discrimination and facilitate genetic testing and participation in genetic research. Critics worry that GINA does not provide adequate protection because it fails to address discrimination on the basis of non-genetic health-related information, and it only regulates the use of genetic information in health insurance and employment. Despite these limitations, GINA represents a major step forward in US policy. Additional research is needed to assess the impact of GINA on industry practice and public opinion. In the mean time, education about GINA and its limitations can help individuals make more informed decisions about genetic testing and participation in genetic research. BioMed Central 2009-01-20 /pmc/articles/PMC2651591/ /pubmed/19348693 http://dx.doi.org/10.1186/gm6 Text en Copyright ©2009 BioMed Central Ltd
spellingShingle Commentary
McGuire, Amy L
Majumder, Mary Anderlik
Two cheers for GINA?
title Two cheers for GINA?
title_full Two cheers for GINA?
title_fullStr Two cheers for GINA?
title_full_unstemmed Two cheers for GINA?
title_short Two cheers for GINA?
title_sort two cheers for gina?
topic Commentary
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2651591/
https://www.ncbi.nlm.nih.gov/pubmed/19348693
http://dx.doi.org/10.1186/gm6
work_keys_str_mv AT mcguireamyl twocheersforgina
AT majumdermaryanderlik twocheersforgina