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Association between perceived treatment adherence and health-related quality of life in children with juvenile idiopathic arthritis: perspectives of both parents and children
OBJECTIVE: The aim of the study was to examine the relationship between perceived treatment adherence and health-related quality of life (HRQOL) in children with arthritis, from both parent and child perspectives. METHODS: Patients and their parents, who attended the juvenile idiopathic arthritis (J...
Autores principales: | , , , |
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Formato: | Texto |
Lenguaje: | English |
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Dove Medical Press
2008
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2770382/ https://www.ncbi.nlm.nih.gov/pubmed/19920952 |
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author | April, Karine Toupin Feldman, Debbie Ehrmann Zunzunegui, Maria Victoria Duffy, Ciarán M |
author_facet | April, Karine Toupin Feldman, Debbie Ehrmann Zunzunegui, Maria Victoria Duffy, Ciarán M |
author_sort | April, Karine Toupin |
collection | PubMed |
description | OBJECTIVE: The aim of the study was to examine the relationship between perceived treatment adherence and health-related quality of life (HRQOL) in children with arthritis, from both parent and child perspectives. METHODS: Patients and their parents, who attended the juvenile idiopathic arthritis (JIA) clinic at the Montreal Children's Hospital, completed the Juvenile Arthritis Quality of Life Questionnaire (JAQQ), and either the Child Adherence Report Questionnaire (CARQ) or the Parent Adherence Report Questionnaire (PARQ). Linear regression models examined the associations between perceived treatment adherence and HRQOL while adjusting for age, severity, duration of the disease, and complexity of the medical regimen. RESULTS: Perceived adherence to medications was associated with a better HRQOL total score from the children’s perspective (β = −0.02, 95% confidence interval [CI] = −0.03, −0.004), particularly with respect to gross motor (β = −0.03, 95% CI = −0.05, −0.01) and psychosocial functions (β = −0.03, 95% CI = −0.04, −0.01). According to parents, perceived adherence to exercises was associated with fewer symptoms (β = −0.01, 95% CI = −0.03, 0.000) and better psychosocial functioning (β = −0.01, 95% CI = −0.03, −0.002). CONCLUSION: Perceived adherence to medications is associated with an improved HRQOL according to children. According to parents, adherence to exercises may be associated with an improved HRQOL. |
format | Text |
id | pubmed-2770382 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2008 |
publisher | Dove Medical Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-27703822009-11-17 Association between perceived treatment adherence and health-related quality of life in children with juvenile idiopathic arthritis: perspectives of both parents and children April, Karine Toupin Feldman, Debbie Ehrmann Zunzunegui, Maria Victoria Duffy, Ciarán M Patient Prefer Adherence Original Research OBJECTIVE: The aim of the study was to examine the relationship between perceived treatment adherence and health-related quality of life (HRQOL) in children with arthritis, from both parent and child perspectives. METHODS: Patients and their parents, who attended the juvenile idiopathic arthritis (JIA) clinic at the Montreal Children's Hospital, completed the Juvenile Arthritis Quality of Life Questionnaire (JAQQ), and either the Child Adherence Report Questionnaire (CARQ) or the Parent Adherence Report Questionnaire (PARQ). Linear regression models examined the associations between perceived treatment adherence and HRQOL while adjusting for age, severity, duration of the disease, and complexity of the medical regimen. RESULTS: Perceived adherence to medications was associated with a better HRQOL total score from the children’s perspective (β = −0.02, 95% confidence interval [CI] = −0.03, −0.004), particularly with respect to gross motor (β = −0.03, 95% CI = −0.05, −0.01) and psychosocial functions (β = −0.03, 95% CI = −0.04, −0.01). According to parents, perceived adherence to exercises was associated with fewer symptoms (β = −0.01, 95% CI = −0.03, 0.000) and better psychosocial functioning (β = −0.01, 95% CI = −0.03, −0.002). CONCLUSION: Perceived adherence to medications is associated with an improved HRQOL according to children. According to parents, adherence to exercises may be associated with an improved HRQOL. Dove Medical Press 2008-02-02 /pmc/articles/PMC2770382/ /pubmed/19920952 Text en © 2008 Toupin April et al, publisher and licensee Dove Medical Press Ltd. This is an Open Access article which permits unrestricted noncommercial use, provided the original work is properly cited. |
spellingShingle | Original Research April, Karine Toupin Feldman, Debbie Ehrmann Zunzunegui, Maria Victoria Duffy, Ciarán M Association between perceived treatment adherence and health-related quality of life in children with juvenile idiopathic arthritis: perspectives of both parents and children |
title | Association between perceived treatment adherence and health-related quality of life in children with juvenile idiopathic arthritis: perspectives of both parents and children |
title_full | Association between perceived treatment adherence and health-related quality of life in children with juvenile idiopathic arthritis: perspectives of both parents and children |
title_fullStr | Association between perceived treatment adherence and health-related quality of life in children with juvenile idiopathic arthritis: perspectives of both parents and children |
title_full_unstemmed | Association between perceived treatment adherence and health-related quality of life in children with juvenile idiopathic arthritis: perspectives of both parents and children |
title_short | Association between perceived treatment adherence and health-related quality of life in children with juvenile idiopathic arthritis: perspectives of both parents and children |
title_sort | association between perceived treatment adherence and health-related quality of life in children with juvenile idiopathic arthritis: perspectives of both parents and children |
topic | Original Research |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2770382/ https://www.ncbi.nlm.nih.gov/pubmed/19920952 |
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