Measuring disease-specific quality of life in rare populations: a practical approach to cross-cultural translation

BACKGROUND: Disease-specific quality of life (QoL) measures have enhanced the capacity of outcome measures to evaluate subtle changes and differences between groups. However, when the specific disease is rare, the cohort of patients is small and international collaboration is often necessary to acco...

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Detalles Bibliográficos
Autores principales: Price, Victoria E, Klaassen, Robert J, Bolton-Maggs, Paula HB, Grainger, John D, Curtis, Christine, Wakefield, Cindy, Dufort, Gustavo, Riedlinger, Arne, Soltner, Christophe, Blanchette, Victor S, Young, Nancy L
Formato: Texto
Lenguaje:English
Publicado: BioMed Central 2009
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2773763/
https://www.ncbi.nlm.nih.gov/pubmed/19852803
http://dx.doi.org/10.1186/1477-7525-7-92

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