An Evidence-Based Model of Multidisciplinary Care for Patients and Families Affected by Classical Congenital Adrenal Hyperplasia due to 21-Hydroxylase Deficiency

In 2002 a consensus statement pertaining to the management of classical congenital adrenal hyperplasia due to 21-hydroxylase deficiency was jointly produced by the Lawson Wilkins Pediatric Endocrine Society and the European Society of Pediatric Endocrinology. One of the recommendations of this conse...

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Autores principales: Schaeffer, Traci L., Tryggestad, Jeanie B., Mallappa, Ashwini, Hanna, Adam E., Krishnan, Sowmya, Chernausek, Steven D., Chalmers, Laura J., Reiner, William G., Kropp, Brad P., Wisniewski, Amy B.
Formato: Texto
Lenguaje:English
Publicado: Hindawi Publishing Corporation 2010
Materias:
Review Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2842898/
https://www.ncbi.nlm.nih.gov/pubmed/20339513
http://dx.doi.org/10.1155/2010/692439
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author Schaeffer, Traci L.
Tryggestad, Jeanie B.
Mallappa, Ashwini
Hanna, Adam E.
Krishnan, Sowmya
Chernausek, Steven D.
Chalmers, Laura J.
Reiner, William G.
Kropp, Brad P.
Wisniewski, Amy B.
author_facet Schaeffer, Traci L.
Tryggestad, Jeanie B.
Mallappa, Ashwini
Hanna, Adam E.
Krishnan, Sowmya
Chernausek, Steven D.
Chalmers, Laura J.
Reiner, William G.
Kropp, Brad P.
Wisniewski, Amy B.
author_sort Schaeffer, Traci L.
collection PubMed
description In 2002 a consensus statement pertaining to the management of classical congenital adrenal hyperplasia due to 21-hydroxylase deficiency was jointly produced by the Lawson Wilkins Pediatric Endocrine Society and the European Society of Pediatric Endocrinology. One of the recommendations of this consensus was that centers should maintain multidisciplinary teams for providing care and support to these patients and their families. However, the specifics for how this should be accomplished were not addressed in the original consensus statement. Here we interpret and translate the 2002 consensus statement recommendations into medical, surgical and mental health protocols. Additionally, we provide preliminary evidence that such protocols result in improved care and support for patients and families.
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spelling pubmed-28428982010-03-25 An Evidence-Based Model of Multidisciplinary Care for Patients and Families Affected by Classical Congenital Adrenal Hyperplasia due to 21-Hydroxylase Deficiency Schaeffer, Traci L. Tryggestad, Jeanie B. Mallappa, Ashwini Hanna, Adam E. Krishnan, Sowmya Chernausek, Steven D. Chalmers, Laura J. Reiner, William G. Kropp, Brad P. Wisniewski, Amy B. Int J Pediatr Endocrinol Review Article In 2002 a consensus statement pertaining to the management of classical congenital adrenal hyperplasia due to 21-hydroxylase deficiency was jointly produced by the Lawson Wilkins Pediatric Endocrine Society and the European Society of Pediatric Endocrinology. One of the recommendations of this consensus was that centers should maintain multidisciplinary teams for providing care and support to these patients and their families. However, the specifics for how this should be accomplished were not addressed in the original consensus statement. Here we interpret and translate the 2002 consensus statement recommendations into medical, surgical and mental health protocols. Additionally, we provide preliminary evidence that such protocols result in improved care and support for patients and families. Hindawi Publishing Corporation 2010 2010-03-18 /pmc/articles/PMC2842898/ /pubmed/20339513 http://dx.doi.org/10.1155/2010/692439 Text en Copyright © 2010 Traci L. Schaeffer et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Review Article
Schaeffer, Traci L.
Tryggestad, Jeanie B.
Mallappa, Ashwini
Hanna, Adam E.
Krishnan, Sowmya
Chernausek, Steven D.
Chalmers, Laura J.
Reiner, William G.
Kropp, Brad P.
Wisniewski, Amy B.
An Evidence-Based Model of Multidisciplinary Care for Patients and Families Affected by Classical Congenital Adrenal Hyperplasia due to 21-Hydroxylase Deficiency
title An Evidence-Based Model of Multidisciplinary Care for Patients and Families Affected by Classical Congenital Adrenal Hyperplasia due to 21-Hydroxylase Deficiency
title_full An Evidence-Based Model of Multidisciplinary Care for Patients and Families Affected by Classical Congenital Adrenal Hyperplasia due to 21-Hydroxylase Deficiency
title_fullStr An Evidence-Based Model of Multidisciplinary Care for Patients and Families Affected by Classical Congenital Adrenal Hyperplasia due to 21-Hydroxylase Deficiency
title_full_unstemmed An Evidence-Based Model of Multidisciplinary Care for Patients and Families Affected by Classical Congenital Adrenal Hyperplasia due to 21-Hydroxylase Deficiency
title_short An Evidence-Based Model of Multidisciplinary Care for Patients and Families Affected by Classical Congenital Adrenal Hyperplasia due to 21-Hydroxylase Deficiency
title_sort evidence-based model of multidisciplinary care for patients and families affected by classical congenital adrenal hyperplasia due to 21-hydroxylase deficiency
topic Review Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2842898/
https://www.ncbi.nlm.nih.gov/pubmed/20339513
http://dx.doi.org/10.1155/2010/692439
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