Cargando…

Making sense of risk. Donor risk communication in families considering living liverdonation to a child

This paper contributes to the growing line of thought in bioethics that respect for autonomy should not be equated to the facilitation of individualistic self determination through standard requirements of informed consent in all healthcare contexts. The paper describes how in the context of donatio...

Descripción completa

Detalles Bibliográficos
Autores principales: Knibbe, Mare, Verkerk, Marian
Formato: Texto
Lenguaje:English
Publicado: Springer Netherlands 2009
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2848342/
https://www.ncbi.nlm.nih.gov/pubmed/19882235
http://dx.doi.org/10.1007/s11019-009-9226-7
_version_ 1782179673808044032
author Knibbe, Mare
Verkerk, Marian
author_facet Knibbe, Mare
Verkerk, Marian
author_sort Knibbe, Mare
collection PubMed
description This paper contributes to the growing line of thought in bioethics that respect for autonomy should not be equated to the facilitation of individualistic self determination through standard requirements of informed consent in all healthcare contexts. The paper describes how in the context of donation for living related liver transplantation (LRLT) meaningful, responsible decision making is often embedded within family processes and its negotiation. We suggest that good donor risk communication in families promote “conscientious autonomy” and “reflective trust”. From this, the paper offers the suggestion that transplant teams and other relevant professionals have to broaden their role and responsibility for risk communication beyond proper disclosure by addressing the impact of varied psychosocial conditions on risk interpretation and assessment for potential donors and family stakeholders. In conclusion, we suggest further research questions on how professional responsibility and role-taking in risk communication should be morally understood.
format Text
id pubmed-2848342
institution National Center for Biotechnology Information
language English
publishDate 2009
publisher Springer Netherlands
record_format MEDLINE/PubMed
spelling pubmed-28483422010-04-12 Making sense of risk. Donor risk communication in families considering living liverdonation to a child Knibbe, Mare Verkerk, Marian Med Health Care Philos Scientific Contribution This paper contributes to the growing line of thought in bioethics that respect for autonomy should not be equated to the facilitation of individualistic self determination through standard requirements of informed consent in all healthcare contexts. The paper describes how in the context of donation for living related liver transplantation (LRLT) meaningful, responsible decision making is often embedded within family processes and its negotiation. We suggest that good donor risk communication in families promote “conscientious autonomy” and “reflective trust”. From this, the paper offers the suggestion that transplant teams and other relevant professionals have to broaden their role and responsibility for risk communication beyond proper disclosure by addressing the impact of varied psychosocial conditions on risk interpretation and assessment for potential donors and family stakeholders. In conclusion, we suggest further research questions on how professional responsibility and role-taking in risk communication should be morally understood. Springer Netherlands 2009-11-01 2010 /pmc/articles/PMC2848342/ /pubmed/19882235 http://dx.doi.org/10.1007/s11019-009-9226-7 Text en © The Author(s) 2009 https://creativecommons.org/licenses/by-nc/4.0/ This article is distributed under the terms of the Creative Commons Attribution Noncommercial License which permits any noncommercial use, distribution, and reproduction in any medium, provided the original author(s) and source are credited.
spellingShingle Scientific Contribution
Knibbe, Mare
Verkerk, Marian
Making sense of risk. Donor risk communication in families considering living liverdonation to a child
title Making sense of risk. Donor risk communication in families considering living liverdonation to a child
title_full Making sense of risk. Donor risk communication in families considering living liverdonation to a child
title_fullStr Making sense of risk. Donor risk communication in families considering living liverdonation to a child
title_full_unstemmed Making sense of risk. Donor risk communication in families considering living liverdonation to a child
title_short Making sense of risk. Donor risk communication in families considering living liverdonation to a child
title_sort making sense of risk. donor risk communication in families considering living liverdonation to a child
topic Scientific Contribution
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2848342/
https://www.ncbi.nlm.nih.gov/pubmed/19882235
http://dx.doi.org/10.1007/s11019-009-9226-7
work_keys_str_mv AT knibbemare makingsenseofriskdonorriskcommunicationinfamiliesconsideringlivingliverdonationtoachild
AT verkerkmarian makingsenseofriskdonorriskcommunicationinfamiliesconsideringlivingliverdonationtoachild