Cargando…
The Role of Support Groups, Advocacy Groups, and Other Interested Parties in Improving the Care of Patients with Congenital Adrenal Hyperplasia: Pleas and Warnings
In the era of advocacy groups, it seems appropriate to contemplate how best to utilize them for patient benefit in the management of those with disorders of sex development (DSD), including those with congenital adrenal hyperplasia (CAH). Such interactions, to be constructive, require a spirit of co...
Autores principales: | Lee, Peter A., Houk, Christopher P. |
---|---|
Formato: | Texto |
Lenguaje: | English |
Publicado: |
Hindawi Publishing Corporation
2010
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2905711/ https://www.ncbi.nlm.nih.gov/pubmed/20652077 http://dx.doi.org/10.1155/2010/563640 |
Ejemplares similares
-
Strengthening international patient advocacy perspectives on patient involvement in HTA within the HTAi Patient and Citizen Involvement Interest Group – Commentary
por: Wale, Janet L., et al.
Publicado: (2017) -
Psychosexual development and quality of life outcomes in females with congenital adrenal hyperplasia
por: Kanhere, Mansi, et al.
Publicado: (2015) -
Congenital adrenal hyperplasia
por: Dessinioti, Cleo, et al.
Publicado: (2009) -
Congenital Adrenal Hyperplasia
por: Speiser, Phyllis W.
Publicado: (2015) -
Fully Masculinized 46,XX Individuals with Congenital Adrenal
Hyperplasia: Perspective Regarding Sex of Rearing and Surgery
por: L Jones, Collin, et al.
Publicado: (2022)