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The Perfidy of Stigma Experienced by the Palliative CHBC of Kanye in Botswana

BACKGROUND/AIM: To explore and assess the magnitude of stigma and its impact to palliative care giving. OBJECTIVE: To involve the palliative caregivers in exploring the impact of stigma in their care giving. MATERIALS AND METHODS: The study was exploratory in nature and used attracted qualitative de...

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Detalles Bibliográficos
Autor principal: Kangethe, Simon
Formato: Texto
Lenguaje:English
Publicado: Medknow Publications 2010
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2936080/
https://www.ncbi.nlm.nih.gov/pubmed/20859469
http://dx.doi.org/10.4103/0973-1075.63132
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author Kangethe, Simon
author_facet Kangethe, Simon
author_sort Kangethe, Simon
collection PubMed
description BACKGROUND/AIM: To explore and assess the magnitude of stigma and its impact to palliative care giving. OBJECTIVE: To involve the palliative caregivers in exploring the impact of stigma in their care giving. MATERIALS AND METHODS: The study was exploratory in nature and used attracted qualitative design and interviewed 82 palliative caregivers in 10 focus groups using an interview guide as a data collection instrument, and five CHBC nurses on one-to-one in-depth interviews, still guided by an interview guide that differed only slightly with the one for the caregivers. RESULTS: The study findings revealed that stigma and discrimination was immensely perfidious due to: (1) Discrimination against caregivers by the service providers, especially at the Kanye referral hospital; (2) Refusal of youth to help the elderly caregivers; (3) Shunning of government assistance packages by caregivers and their clients; (4) Caregivers secretly taking away their clients to faraway places for assistance; (5) Caregivers and their clients turning to alternative therapies from the traditional healers; (6) Caregivers and clients having inadequate assistance. RECOMMENDATIONS: We recommend strong anti-stigma education and campaign by the government, non-governmental organizations (NGOs) and all the civil society bodies and campaigners.
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spelling pubmed-29360802010-09-21 The Perfidy of Stigma Experienced by the Palliative CHBC of Kanye in Botswana Kangethe, Simon Indian J Palliat Care Original Article BACKGROUND/AIM: To explore and assess the magnitude of stigma and its impact to palliative care giving. OBJECTIVE: To involve the palliative caregivers in exploring the impact of stigma in their care giving. MATERIALS AND METHODS: The study was exploratory in nature and used attracted qualitative design and interviewed 82 palliative caregivers in 10 focus groups using an interview guide as a data collection instrument, and five CHBC nurses on one-to-one in-depth interviews, still guided by an interview guide that differed only slightly with the one for the caregivers. RESULTS: The study findings revealed that stigma and discrimination was immensely perfidious due to: (1) Discrimination against caregivers by the service providers, especially at the Kanye referral hospital; (2) Refusal of youth to help the elderly caregivers; (3) Shunning of government assistance packages by caregivers and their clients; (4) Caregivers secretly taking away their clients to faraway places for assistance; (5) Caregivers and their clients turning to alternative therapies from the traditional healers; (6) Caregivers and clients having inadequate assistance. RECOMMENDATIONS: We recommend strong anti-stigma education and campaign by the government, non-governmental organizations (NGOs) and all the civil society bodies and campaigners. Medknow Publications 2010 /pmc/articles/PMC2936080/ /pubmed/20859469 http://dx.doi.org/10.4103/0973-1075.63132 Text en © Indian Journal of Palliative Care http://creativecommons.org/licenses/by/2.0 This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Article
Kangethe, Simon
The Perfidy of Stigma Experienced by the Palliative CHBC of Kanye in Botswana
title The Perfidy of Stigma Experienced by the Palliative CHBC of Kanye in Botswana
title_full The Perfidy of Stigma Experienced by the Palliative CHBC of Kanye in Botswana
title_fullStr The Perfidy of Stigma Experienced by the Palliative CHBC of Kanye in Botswana
title_full_unstemmed The Perfidy of Stigma Experienced by the Palliative CHBC of Kanye in Botswana
title_short The Perfidy of Stigma Experienced by the Palliative CHBC of Kanye in Botswana
title_sort perfidy of stigma experienced by the palliative chbc of kanye in botswana
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2936080/
https://www.ncbi.nlm.nih.gov/pubmed/20859469
http://dx.doi.org/10.4103/0973-1075.63132
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