Cargando…

Contribution of rare disease patient organisations to medical education

Detalles Bibliográficos
Autor principal:	von Gizycki, Rainald
Formato:	Texto
Lenguaje:	English
Publicado:	BioMed Central 2010
Materias:	Oral Presentation
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2958383/ http://dx.doi.org/10.1186/1750-1172-5-S1-O25

Ejemplares similares

Very rare disorders - organisation of care
por: Hennekam, Raoul CM
Publicado: (2010)

The present situation of Rare Diseases in Central/Eastern Europe? The role of patient organisations
por: Pogany, Gabor
Publicado: (2010)

Medical education: the role of patients
por: Nourissier, Christel
Publicado: (2010)

Classification of rare diseases: a worldwide effort to contribute to the International Classification of Diseases
por: Rath, Ana, et al.
Publicado: (2010)

Patient innovation under rare diseases and chronic needs
por: Oliveira, Pedro, et al.
Publicado: (2014)

The German plan for rare diseases: a development in progress
por: Graf von der Schulenburg, Johann Mathias
Publicado: (2010)

The “Podiatry Diabetes Model”- an example of an organised approach to the podiatric care of people with diabetes in regional Victoria
por: Perrin, Byron, et al.
Publicado: (2011)

Evalutation of hand hygiene compliance in medical educational videos
por: Longtin, Y, et al.
Publicado: (2011)

The Swedish rare disease information database and the Swedish information centre for rare diseases
por: Greek-Winald, Christina, et al.
Publicado: (2010)

The added value of centres of expertise for rare disease patients in Europe
por: Kole, Anna A, et al.
Publicado: (2010)

O025: Organisational transformation – the application of novel change techniques & social media understanding to motivate infection preventionists
por: Storr, J, et al.
Publicado: (2013)

O7 SMILE: Sustaining Medical education In a Lockdown Environment Can free online access medical education be effective for the retention of long term knowledge acquisition?
por: Pascoe, John, et al.
Publicado: (2021)

Determinants for research on rare diseases
por: Palau, Francesc
Publicado: (2010)

Ageing in rare, chronic diseases
por: Smit, Cees
Publicado: (2010)

OrphanAnesthesia – anesthesia recommendations for patients suffering from rare diseases
por: Münster, Tino
Publicado: (2014)

RARE-Bestpractices: a platform for sharing best practices for the management of rare diseases
por: Taruscio, D, et al.
Publicado: (2014)

French experience with rare diseases plans
por: Le Henanff, Guillaume, et al.
Publicado: (2010)

Which support from the French Foundation of rare disease towards clinical trial set up in rare diseases?
por: Ravagnan, Luigi
Publicado: (2015)

The Biopontis Alliance Rare Disease Foundation (BARDF) – an innovative model for early stage rare disease therapy financing and development
por: Tambuyzer, Erik T, et al.
Publicado: (2014)

NS1-mediated delay of immune activation contributes to influenza A virulence in ferrets
por: Meunier, I, et al.
Publicado: (2011)

Recommendations for the development of national plans for rare diseases
por: Van der Zeijden, Albert, et al.
Publicado: (2010)

How to code rare diseases with international terminologies?
por: Rath, Ana, et al.
Publicado: (2014)

Towards a European platform for Rare Diseases Registries
por: Nicholl, Ciarán
Publicado: (2014)

National Rare Disease Registries: overview from Spain
por: de la Paz, M Posada, et al.
Publicado: (2014)

The European Union Committee of Experts on Rare Diseases (EUCERD): a new committee to help the European Commission advance in the field of rare disease policy
por: Moliner, Antoni Montserrat, et al.
Publicado: (2010)

Scope and management of Patient Registries for orphan rare disease (ORD) meeting the demands of all involved stakeholders
por: Hernberg-Ståhl, Elizabeth
Publicado: (2010)

Use of animal models for exome prioritization of rare disease genes
por: Smedley, Damian, et al.
Publicado: (2014)

Long-term education and employment outcomes in pediatric-onset systemic lupus erythematosus
por: Lawson, Erica F, et al.
Publicado: (2012)

Knowledge on malignant hyperthermia: as rare as the disease? A nation wide survey
por: Wolvetang, Timothy, et al.
Publicado: (2014)

Identifying specific social challenges of rare diseases: current challenges and issues
por: Dan, Dorica, et al.
Publicado: (2014)

Specific social challenges for rare diseases: the French experience, 2005-2014
por: Nourissier, Christel
Publicado: (2014)

Rare diseases and disabilities: improving the information available with three Orphanet projects
por: de Chalendar, Myriam, et al.
Publicado: (2014)

Contributions of multimodal imaging
por: Oyen, Wim JG
Publicado: (2014)

Can people living with a rare disease be independent? Inspiring personal stories
por: Pogany, Gabor
Publicado: (2014)

OA10 Pregnancy-associated osteoporosis - a rare subset of bone disease
por: Xia, Zhongyang, et al.
Publicado: (2023)

The challenges of using new technologies (online education) for drowning prevention education in Iran
por: Shamsi, Afzal, et al.
Publicado: (2022)

A "Family Project" to fight Usher, a rare disease leading to deaf-blindness
por: Suchert, Steffen
Publicado: (2010)

Cross-border health care represents a key issue in the field of rare diseases
por: Facchin, Paola
Publicado: (2010)

European Network of Rare Disease Help Lines (ENRDHLs) – caller profile analysis 2013
por: Iskrov, Georgi, et al.
Publicado: (2014)

Perspective having a Centre of Expertise that covers more than one rare disease
por: Ostergaard, John R
Publicado: (2014)

Cannot write session to /tmp/vufind_sessions/sess_k08k5k1nu1mq8v9cf1tqqp38tf