Experiences and barriers to Health-Related Quality of Life following liver transplantation: a qualitative analysis of the perspectives of pediatric patients and their parents

This paper examines health-related quality of life (HRQOL) experiences and barriers facing young people who have received a liver transplant (LT). Semi-structured qualitative interviews were conducted with children and adolescents who have undergone LT and their parents. Findings indicate that LT fo...

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Detalles Bibliográficos
Autores principales: Nicholas, David B, Otley, Anthony R, Taylor, Rachel, Dhawan, Anil, Gilmour, Susan, Ng, Vicky Lee
Formato: Texto
Lenguaje:English
Publicado: BioMed Central 2010
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3024277/
https://www.ncbi.nlm.nih.gov/pubmed/21176211
http://dx.doi.org/10.1186/1477-7525-8-150
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author Nicholas, David B
Otley, Anthony R
Taylor, Rachel
Dhawan, Anil
Gilmour, Susan
Ng, Vicky Lee
author_facet Nicholas, David B
Otley, Anthony R
Taylor, Rachel
Dhawan, Anil
Gilmour, Susan
Ng, Vicky Lee
author_sort Nicholas, David B
collection PubMed
description This paper examines health-related quality of life (HRQOL) experiences and barriers facing young people who have received a liver transplant (LT). Semi-structured qualitative interviews were conducted with children and adolescents who have undergone LT and their parents. Findings indicate that LT fosters substantially improved child and adolescent HRQOL; however, young people also experience challenges such as difficulties with medication compliance, self-management of care routines, physical activity restrictions, and undesirable medical procedures. Implications and recommendations for clinical practice and research are discussed.
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spelling pubmed-30242772011-01-21 Experiences and barriers to Health-Related Quality of Life following liver transplantation: a qualitative analysis of the perspectives of pediatric patients and their parents Nicholas, David B Otley, Anthony R Taylor, Rachel Dhawan, Anil Gilmour, Susan Ng, Vicky Lee Health Qual Life Outcomes Research This paper examines health-related quality of life (HRQOL) experiences and barriers facing young people who have received a liver transplant (LT). Semi-structured qualitative interviews were conducted with children and adolescents who have undergone LT and their parents. Findings indicate that LT fosters substantially improved child and adolescent HRQOL; however, young people also experience challenges such as difficulties with medication compliance, self-management of care routines, physical activity restrictions, and undesirable medical procedures. Implications and recommendations for clinical practice and research are discussed. BioMed Central 2010-12-22 /pmc/articles/PMC3024277/ /pubmed/21176211 http://dx.doi.org/10.1186/1477-7525-8-150 Text en Copyright ©2010 Nicholas et al; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (<url>http://creativecommons.org/licenses/by/2.0</url>), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Research
Nicholas, David B
Otley, Anthony R
Taylor, Rachel
Dhawan, Anil
Gilmour, Susan
Ng, Vicky Lee
Experiences and barriers to Health-Related Quality of Life following liver transplantation: a qualitative analysis of the perspectives of pediatric patients and their parents
title Experiences and barriers to Health-Related Quality of Life following liver transplantation: a qualitative analysis of the perspectives of pediatric patients and their parents
title_full Experiences and barriers to Health-Related Quality of Life following liver transplantation: a qualitative analysis of the perspectives of pediatric patients and their parents
title_fullStr Experiences and barriers to Health-Related Quality of Life following liver transplantation: a qualitative analysis of the perspectives of pediatric patients and their parents
title_full_unstemmed Experiences and barriers to Health-Related Quality of Life following liver transplantation: a qualitative analysis of the perspectives of pediatric patients and their parents
title_short Experiences and barriers to Health-Related Quality of Life following liver transplantation: a qualitative analysis of the perspectives of pediatric patients and their parents
title_sort experiences and barriers to health-related quality of life following liver transplantation: a qualitative analysis of the perspectives of pediatric patients and their parents
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3024277/
https://www.ncbi.nlm.nih.gov/pubmed/21176211
http://dx.doi.org/10.1186/1477-7525-8-150
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