Guidelines for the Development of Comprehensive Care Centers for Congenital Adrenal Hyperplasia: Guidance from the CARES Foundation Initiative

Patients with rare and complex diseases such as congenital adrenal hyperplasia (CAH) often receive fragmented and inadequate care unless efforts are coordinated among providers. Translating the concepts of the medical home and comprehensive health care for individuals with CAH offers many benefits f...

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Detalles Bibliográficos
Autores principales: Auchus, Richard J., Witchel, Selma Feldman, Leight, Kelly R., Aisenberg, Javier, Azziz, Ricardo, Bachega, Tânia A., Baker, Linda A., Baratz, Arlene B., Baskin, Laurence S., Berenbaum, Sheri A., Breault, David T., Cerame, Barbara I., Conway, Gerard S., Eugster, Erica A., Fracassa, Stephanie, Gearhart, John P., Geffner, Mitchell E., Harris, Katharine B., Hurwitz, Richard S., Katz, Aviva L., Kalro, Brinda N., Lee, Peter A., Alger Lin, Gretchen, Loechner, Karen J., Marshall, Ian, Merke, Deborah P., Migeon, Claude J., Miller, Walter L., Nenadovich, Tamara L., Oberfield, Sharon E., Pass, Kenneth A., Poppas, Dix P., Lloyd-Puryear, Michele A., Quigley, Charmian A., Riepe, Felix G., Rink, Richard C., Rivkees, Scott A., Sandberg, David E., Schaeffer, Traci L., Schlussel, Richard N., Schneck, Francis X., Seely, Ellen W., Snyder, Diane, Speiser, Phyllis W., Therrell, Bradford L., VanRyzin, Carol, Vogiatzi, Maria G., Wajnrajch, Michael P., White, Perrin C., Zuckerman, Alan E.
Formato: Texto
Lenguaje:English
Publicado: Hindawi Publishing Corporation 2010
Materias:
Guidelines
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3025377/
https://www.ncbi.nlm.nih.gov/pubmed/21274448
http://dx.doi.org/10.1155/2010/275213

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