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The Ins and Outs of an Online Bipolar Education Program: A Study of Program Attrition

BACKGROUND: The science of eHealth interventions is rapidly evolving. However, despite positive outcomes, evaluations of eHealth applications have thus far failed to explain the high attrition rates that are associated with some eHealth programs. Patient adherence remains an issue, and the science o...

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Autores principales: Nicholas, Jennifer, Proudfoot, Judith, Parker, Gordon, Gillis, Inika, Burckhardt, Rowan, Manicavasagar, Vijaya, Smith, Meg
Formato: Texto
Lenguaje:English
Publicado: Gunther Eysenbach 2010
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3057316/
https://www.ncbi.nlm.nih.gov/pubmed/21169169
http://dx.doi.org/10.2196/jmir.1450
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author Nicholas, Jennifer
Proudfoot, Judith
Parker, Gordon
Gillis, Inika
Burckhardt, Rowan
Manicavasagar, Vijaya
Smith, Meg
author_facet Nicholas, Jennifer
Proudfoot, Judith
Parker, Gordon
Gillis, Inika
Burckhardt, Rowan
Manicavasagar, Vijaya
Smith, Meg
author_sort Nicholas, Jennifer
collection PubMed
description BACKGROUND: The science of eHealth interventions is rapidly evolving. However, despite positive outcomes, evaluations of eHealth applications have thus far failed to explain the high attrition rates that are associated with some eHealth programs. Patient adherence remains an issue, and the science of attrition is still in its infancy. To our knowledge, there has been no in-depth qualitative study aimed at identifying the reasons for nonadherence to—and attrition from— online interventions. OBJECTIVE: This paper explores the predictors of attrition and participant-reported reasons for nonadherence to an online psycho-education program for people newly diagnosed with a bipolar disorder. METHODS: As part of an ongoing randomized controlled trial (RCT) evaluating an online psycho-education program for people newly diagnosed with a bipolar disorder, we undertook an in-depth qualitative study to identify participants’ reasons for nonadherence to, and attrition from, the online intervention as well as a quantitative study investigating predictors of attrition. Within the RCT, 370 participants were randomly allocated to 1 of 2 active interventions or an attention control condition. Descriptive analyses and chi-square tests were used to explore the completion rates of 358 participants, and standard regression analysis was used to identify predictors of attrition. The data from interviews with a subsample of 39 participants who did not complete the online program were analyzed using “thematic analysis” to identify patterns in reported reasons for attrition. RESULTS: Overall, 26.5% of the sample did not complete their assigned intervention. Standard multiple regression analysis revealed that young age (P= .004), male gender (P= .001), and clinical recruitment setting (P= .001) were significant predictors of attrition (F(7,330)= 8.08, P< .001). Thematic analysis of interview data from the noncompleter subsample revealed that difficulties associated with the acute phases of bipolar disorder, not wanting to think about one’s illness, and program factors such as the information being too general and not personally tailored were the major reasons for nonadherence. CONCLUSIONS: The dropout rate was equivalent to other Internet interventions and to face-to-face therapy. Findings from our qualitative study provide participant-reported reasons for discontinuing the online intervention, which, in conjunction with the quantitative investigations about predictors, add to understanding about Internet interventions. However, further research is needed to determine whether there are systematic differences between those who complete and those who do not complete eHealth interventions. Ultimately, this may lead to the identification of population subgroups that most benefit from eHealth interventions and to informing the development of strategies to improve adherence. TRIAL REGISTRATION: ACTRN12608000411347; http://www.anzctr.org.au/ACTRN12608000411347.aspx (Archived by WebCite at http://www.webcitation.org/5uX4uYwVN)
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spelling pubmed-30573162011-03-15 The Ins and Outs of an Online Bipolar Education Program: A Study of Program Attrition Nicholas, Jennifer Proudfoot, Judith Parker, Gordon Gillis, Inika Burckhardt, Rowan Manicavasagar, Vijaya Smith, Meg J Med Internet Res Original Paper BACKGROUND: The science of eHealth interventions is rapidly evolving. However, despite positive outcomes, evaluations of eHealth applications have thus far failed to explain the high attrition rates that are associated with some eHealth programs. Patient adherence remains an issue, and the science of attrition is still in its infancy. To our knowledge, there has been no in-depth qualitative study aimed at identifying the reasons for nonadherence to—and attrition from— online interventions. OBJECTIVE: This paper explores the predictors of attrition and participant-reported reasons for nonadherence to an online psycho-education program for people newly diagnosed with a bipolar disorder. METHODS: As part of an ongoing randomized controlled trial (RCT) evaluating an online psycho-education program for people newly diagnosed with a bipolar disorder, we undertook an in-depth qualitative study to identify participants’ reasons for nonadherence to, and attrition from, the online intervention as well as a quantitative study investigating predictors of attrition. Within the RCT, 370 participants were randomly allocated to 1 of 2 active interventions or an attention control condition. Descriptive analyses and chi-square tests were used to explore the completion rates of 358 participants, and standard regression analysis was used to identify predictors of attrition. The data from interviews with a subsample of 39 participants who did not complete the online program were analyzed using “thematic analysis” to identify patterns in reported reasons for attrition. RESULTS: Overall, 26.5% of the sample did not complete their assigned intervention. Standard multiple regression analysis revealed that young age (P= .004), male gender (P= .001), and clinical recruitment setting (P= .001) were significant predictors of attrition (F(7,330)= 8.08, P< .001). Thematic analysis of interview data from the noncompleter subsample revealed that difficulties associated with the acute phases of bipolar disorder, not wanting to think about one’s illness, and program factors such as the information being too general and not personally tailored were the major reasons for nonadherence. CONCLUSIONS: The dropout rate was equivalent to other Internet interventions and to face-to-face therapy. Findings from our qualitative study provide participant-reported reasons for discontinuing the online intervention, which, in conjunction with the quantitative investigations about predictors, add to understanding about Internet interventions. However, further research is needed to determine whether there are systematic differences between those who complete and those who do not complete eHealth interventions. Ultimately, this may lead to the identification of population subgroups that most benefit from eHealth interventions and to informing the development of strategies to improve adherence. TRIAL REGISTRATION: ACTRN12608000411347; http://www.anzctr.org.au/ACTRN12608000411347.aspx (Archived by WebCite at http://www.webcitation.org/5uX4uYwVN) Gunther Eysenbach 2010-12-19 /pmc/articles/PMC3057316/ /pubmed/21169169 http://dx.doi.org/10.2196/jmir.1450 Text en ©Jennifer Nicholas, Judith Proudfoot, Gordon Parker, Inika Gillis, Rowan Burckhardt, Vijaya Manicavasagar, Meg Smith. Originally published in the Journal of Medical Internet Research (http://www.jmir.org), 19.12.2010   http://creativecommons.org/licenses/by/2.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Journal of Medical Internet Research, is properly cited. The complete bibliographic information, a link to the original publication on http://www.jmir.org/, as well as this copyright and license information must be included.
spellingShingle Original Paper
Nicholas, Jennifer
Proudfoot, Judith
Parker, Gordon
Gillis, Inika
Burckhardt, Rowan
Manicavasagar, Vijaya
Smith, Meg
The Ins and Outs of an Online Bipolar Education Program: A Study of Program Attrition
title The Ins and Outs of an Online Bipolar Education Program: A Study of Program Attrition
title_full The Ins and Outs of an Online Bipolar Education Program: A Study of Program Attrition
title_fullStr The Ins and Outs of an Online Bipolar Education Program: A Study of Program Attrition
title_full_unstemmed The Ins and Outs of an Online Bipolar Education Program: A Study of Program Attrition
title_short The Ins and Outs of an Online Bipolar Education Program: A Study of Program Attrition
title_sort ins and outs of an online bipolar education program: a study of program attrition
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3057316/
https://www.ncbi.nlm.nih.gov/pubmed/21169169
http://dx.doi.org/10.2196/jmir.1450
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