Cargando…

Sharing Data for Public Health Research by Members of an International Online Diabetes Social Network

BACKGROUND: Surveillance and response to diabetes may be accelerated through engaging online diabetes social networks (SNs) in consented research. We tested the willingness of an online diabetes community to share data for public health research by providing members with a privacy-preserving social...

Descripción completa

Detalles Bibliográficos
Autores principales:	Weitzman, Elissa R., Adida, Ben, Kelemen, Skyler, Mandl, Kenneth D.
Formato:	Texto
Lenguaje:	English
Publicado:	Public Library of Science 2011
Materias:	Research Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3083415/ https://www.ncbi.nlm.nih.gov/pubmed/21556358 http://dx.doi.org/10.1371/journal.pone.0019256

Ejemplares similares

Surveillance of an Online Social Network to Assess Population-level Diabetes Health Status and Healthcare Quality
por: Weitzman, Elissa R, et al.
Publicado: (2011)

Willingness to share personal health record data for care improvement and public health: a survey of experienced personal health record users
por: Weitzman, Elissa R, et al.
Publicado: (2012)

Sharing Medical Data for Health Research: The Early Personal Health Record Experience
por: Weitzman, Elissa R, et al.
Publicado: (2010)

Evolving Research Data Sharing Networks to Clinical App Sharing Networks
por: Wagholikar, Kavishwar B., et al.
Publicado: (2017)

Acceptability of a Personally Controlled Health Record in a Community-Based Setting: Implications for Policy and Design
por: Weitzman, Elissa R, et al.
Publicado: (2009)

What Are the Benefits and Risks of Fitting Patients with Radiofrequency Identification Devices
por: Levine, Mark, et al.
Publicado: (2007)

Correction: What Are the Benefits and Risks of Fitting Patients with Radiofrequency Identification Devices?
por: Levine, Mark, et al.
Publicado: (2008)

Exploring member’s knowledge sharing intention in online health communities: The effects of social support and overload
por: Yen, Chiahui
Publicado: (2022)

When Do Team Members Share the Lead? A Social Network Analysis
por: Tillmann, Sebastian, et al.
Publicado: (2022)

Who are the ‘super-users’ of public bike share? An analysis of public bike share members in Vancouver, BC
por: Winters, Meghan, et al.
Publicado: (2019)

Feasibility and Efficacy of Online Strategies to Recruit Parents of Children With Rheumatic Diseases for Research
por: Hausmann, Jonathan S., et al.
Publicado: (2022)

SARS-CoV-2 mRNA Vaccine Attitudes as Expressed in U.S. FDA Public Commentary: Need for a Public-Private Partnership in a Learning Immunization System
por: Weitzman, Elissa R., et al.
Publicado: (2021)

Online Social Networking Sites and Mental Health Research
por: Toseeb, Umar, et al.
Publicado: (2015)

The new alchemy: Online networking, data sharing and research activity distribution tools for scientists
por: Williams, Antony J., et al.
Publicado: (2017)

How Returning Aggregate Research Results Impacts Interest in Research Engagement and Planned Actions Relevant to Health Care Decision Making: Cohort Study
por: Weitzman, Elissa R, et al.
Publicado: (2018)

Social media interventions for precision public health: promises and risks
por: Dunn, Adam G., et al.
Publicado: (2018)

Research on Information Leakage Tracking Algorithms in Online Social Networks
por: Xiong, Junli, et al.
Publicado: (2022)

Benefit sharing in genomic and biobanking research in Uganda: Perceptions of researchers and research ethics committee members
por: Mwaka, Erisa Sabakaki, et al.
Publicado: (2022)

Pediatric Severe Acute Respiratory Syndrome Coronavirus 2 (SARS-CoV-2) Vaccines: Perceptions and Attitudes From the Food and Drug Administration Public Commentary( )
por: Weitzman, Elissa R, et al.
Publicado: (2022)

Operational issues and network effects in vaccine markets
por: Adida, Elodie, et al.
Publicado: (2013)

GenePING: secure, scalable management of personal genomic data
por: Adida, Ben, et al.
Publicado: (2006)

Interpersonal Relationship, Knowledge Characteristic, and Knowledge Sharing Behavior of Online Community Members: A TAM Perspective
por: Jiarui, Wu, et al.
Publicado: (2022)

Impact of online social capital on academic performance: exploring the mediating role of online knowledge sharing
por: Salimi, Ghasem, et al.
Publicado: (2022)

Online Social Networks and Smoking Cessation: A Scientific Research Agenda
por: Cobb, Nathan K, et al.
Publicado: (2011)

Research Stakeholders’ Views on Benefits and Challenges for Public Health Research Data Sharing in Kenya: The Importance of Trust and Social Relations
por: Jao, Irene, et al.
Publicado: (2015)

Applying Social Network Analysis to Understand the Knowledge Sharing Behaviour of Practitioners in a Clinical Online Discussion Forum
por: Stewart, Samuel Alan, et al.
Publicado: (2012)

Ideological biases in social sharing of online information about climate change
por: Cann, Tristan J. B., et al.
Publicado: (2021)

Invoking self-related and social thoughts impacts online information sharing
por: Scholz, Christin, et al.
Publicado: (2023)

Establishment of an International Evidence Sharing Network Through Common Data Model for Cardiovascular Research
por: You, Seng Chan, et al.
Publicado: (2022)

Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia
por: Milne, Richard, et al.
Publicado: (2019)

Geographies of an Online Social Network
por: Lengyel, Balázs, et al.
Publicado: (2015)

Opioid Surveillance using Social Media: How URLs are shared among Reddit members
por: Park, Albert, et al.
Publicado: (2018)

Automatically Appraising the Credibility of Vaccine-Related Web Pages Shared on Social Media: A Twitter Surveillance Study
por: Shah, Zubair, et al.
Publicado: (2019)

Dynamics of social network emergence explain network evolution
por: Pomeroy, Caleb, et al.
Publicado: (2020)

Social Features of Online Networks: The Strength of Intermediary Ties in Online Social Media
por: Grabowicz, Przemyslaw A., et al.
Publicado: (2012)

Public opinion on sharing data from health services for clinical and research purposes without explicit consent: an anonymous online survey in the UK
por: Jones, Linda A, et al.
Publicado: (2022)

Pioneering an online course on research methods for India’s medical postgraduates & faculty members
por: Ponnaiah, Manickam, et al.
Publicado: (2022)

Cultural animation in health research: An innovative methodology for patient and public involvement and engagement
por: Kelemen, Mihaela, et al.
Publicado: (2018)

Resource sharing in technologically defined social networks
por: Shirado, Hirokazu, et al.
Publicado: (2019)

Overweight/obesity among social network members has an inverse relationship with Baltimore public housing residents' BMI
por: Gudzune, Kimberly A., et al.
Publicado: (2019)

Cannot write session to /tmp/vufind_sessions/sess_vhgf9ff7mldoc9bh6lev6vp169