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The meanings of consent to the donation of cord blood stem cells: perspectives from an interview-based study of a public cord blood bank in England
This paper explores the perspectives of women who have agreed that their umbilical cord blood may be collected for a public ‘cord blood bank’, for use in transplant medicine or research. Drawing on interview data from 27 mothers who agreed to the collection and use of their umbilical cord blood, the...
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Formato: | Texto |
Lenguaje: | English |
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SAGE Publications
2010
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Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3104822/ https://www.ncbi.nlm.nih.gov/pubmed/21666742 http://dx.doi.org/10.1258/ce.2009.009028 |
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author | Busby, Helen |
author_facet | Busby, Helen |
author_sort | Busby, Helen |
collection | PubMed |
description | This paper explores the perspectives of women who have agreed that their umbilical cord blood may be collected for a public ‘cord blood bank’, for use in transplant medicine or research. Drawing on interview data from 27 mothers who agreed to the collection and use of their umbilical cord blood, these choices and the informed consent process are explored. It is shown that the needs of sick children requiring transplants are prominent in narrative accounts of cord blood banking, together with high expectations for future applications of stem cells. Given this dynamic, a concern arises that the complex and multiple uses of tissues and related data might be oversimplified in the consent process. In conclusion, the positive finding of a commitment to mutuality in cord blood banking among these women is underlined, and its implications for the wider debate on cord blood banking are discussed. |
format | Text |
id | pubmed-3104822 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2010 |
publisher | SAGE Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-31048222011-06-08 The meanings of consent to the donation of cord blood stem cells: perspectives from an interview-based study of a public cord blood bank in England Busby, Helen Clin Ethics Empirical Ethics This paper explores the perspectives of women who have agreed that their umbilical cord blood may be collected for a public ‘cord blood bank’, for use in transplant medicine or research. Drawing on interview data from 27 mothers who agreed to the collection and use of their umbilical cord blood, these choices and the informed consent process are explored. It is shown that the needs of sick children requiring transplants are prominent in narrative accounts of cord blood banking, together with high expectations for future applications of stem cells. Given this dynamic, a concern arises that the complex and multiple uses of tissues and related data might be oversimplified in the consent process. In conclusion, the positive finding of a commitment to mutuality in cord blood banking among these women is underlined, and its implications for the wider debate on cord blood banking are discussed. SAGE Publications 2010-03 /pmc/articles/PMC3104822/ /pubmed/21666742 http://dx.doi.org/10.1258/ce.2009.009028 Text en Copyright http://creativecommons.org/licenses/by/2.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Empirical Ethics Busby, Helen The meanings of consent to the donation of cord blood stem cells: perspectives from an interview-based study of a public cord blood bank in England |
title | The meanings of consent to the donation of cord blood stem cells: perspectives from an interview-based study of a public cord blood bank in England |
title_full | The meanings of consent to the donation of cord blood stem cells: perspectives from an interview-based study of a public cord blood bank in England |
title_fullStr | The meanings of consent to the donation of cord blood stem cells: perspectives from an interview-based study of a public cord blood bank in England |
title_full_unstemmed | The meanings of consent to the donation of cord blood stem cells: perspectives from an interview-based study of a public cord blood bank in England |
title_short | The meanings of consent to the donation of cord blood stem cells: perspectives from an interview-based study of a public cord blood bank in England |
title_sort | meanings of consent to the donation of cord blood stem cells: perspectives from an interview-based study of a public cord blood bank in england |
topic | Empirical Ethics |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3104822/ https://www.ncbi.nlm.nih.gov/pubmed/21666742 http://dx.doi.org/10.1258/ce.2009.009028 |
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