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Living with myotonic dystrophy; what can be learned from couples? a qualitative study
BACKGROUND: Myotonic dystrophy type 1 (MD1) is one of the most prevalent neuromuscular diseases, yet very little is known about how MD1 affects the lives of couples and how they themselves manage individually and together. To better match health care to their problems, concerns and needs, it is impo...
Autores principales: | Cup, Edith HC, Kinébanian, Astrid, Satink, Ton, Pieterse, Allan J, Hendricks, Henk T, Oostendorp, Rob AB, van der Wilt, Gert Jan, van Engelen, Baziel GM |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2011
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3158552/ https://www.ncbi.nlm.nih.gov/pubmed/21752270 http://dx.doi.org/10.1186/1471-2377-11-86 |
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