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Are enrollment sites the key to optimizing participation in genetic studies?

In a time when the challenge of people being over-researched and experiencing research fatigue is increasingly discussed, low participation rates and potential sample biases are a growing concern in genetic research. In a recent study assessing factors relevant to successful recruitment of patients...

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Detalles Bibliográficos
Autor principal: Helgesson, Gert
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2011
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3218815/
https://www.ncbi.nlm.nih.gov/pubmed/21722348
http://dx.doi.org/10.1186/gm257
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author Helgesson, Gert
author_facet Helgesson, Gert
author_sort Helgesson, Gert
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description In a time when the challenge of people being over-researched and experiencing research fatigue is increasingly discussed, low participation rates and potential sample biases are a growing concern in genetic research. In a recent study assessing factors relevant to successful recruitment of patients with myocardial infarction to a genetic study, enrollment site was identified as the most important factor associated with patient participation, whereas patient-level factors such as race, gender and education played a limited or no role. These results underline the importance of appropriate recruitment routines at enrollment sites in order to reach high levels of participation in genetic research. See research article: http://genomemedicine.com/content/3/6/39
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spelling pubmed-32188152011-11-18 Are enrollment sites the key to optimizing participation in genetic studies? Helgesson, Gert Genome Med Research Highlight In a time when the challenge of people being over-researched and experiencing research fatigue is increasingly discussed, low participation rates and potential sample biases are a growing concern in genetic research. In a recent study assessing factors relevant to successful recruitment of patients with myocardial infarction to a genetic study, enrollment site was identified as the most important factor associated with patient participation, whereas patient-level factors such as race, gender and education played a limited or no role. These results underline the importance of appropriate recruitment routines at enrollment sites in order to reach high levels of participation in genetic research. See research article: http://genomemedicine.com/content/3/6/39 BioMed Central 2011-06-28 /pmc/articles/PMC3218815/ /pubmed/21722348 http://dx.doi.org/10.1186/gm257 Text en Copyright ©2011 BioMed Central Ltd.
spellingShingle Research Highlight
Helgesson, Gert
Are enrollment sites the key to optimizing participation in genetic studies?
title Are enrollment sites the key to optimizing participation in genetic studies?
title_full Are enrollment sites the key to optimizing participation in genetic studies?
title_fullStr Are enrollment sites the key to optimizing participation in genetic studies?
title_full_unstemmed Are enrollment sites the key to optimizing participation in genetic studies?
title_short Are enrollment sites the key to optimizing participation in genetic studies?
title_sort are enrollment sites the key to optimizing participation in genetic studies?
topic Research Highlight
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3218815/
https://www.ncbi.nlm.nih.gov/pubmed/21722348
http://dx.doi.org/10.1186/gm257
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