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“Striving for a Good Life” – The Management of Rheumatoid Arthritis as Experienced by Patients

AIM: To generate a theoretical model how patients experience their management of rheumatoid arthritis (RA) in everyday life. METHOD: An explorative design with the grounded theory approach was used by interviewing 16 informants with RA. RESULTS: The generated theoretical model emerged in a core cate...

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Detalles Bibliográficos
Autores principales: Bergsten, Ulrika, Bergman, Stefan, Fridlund, Bengt, Arvidsson, Barbro
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Bentham Open 2011
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3227862/
https://www.ncbi.nlm.nih.gov/pubmed/22135717
http://dx.doi.org/10.2174/1874434601105010095
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author Bergsten, Ulrika
Bergman, Stefan
Fridlund, Bengt
Arvidsson, Barbro
author_facet Bergsten, Ulrika
Bergman, Stefan
Fridlund, Bengt
Arvidsson, Barbro
author_sort Bergsten, Ulrika
collection PubMed
description AIM: To generate a theoretical model how patients experience their management of rheumatoid arthritis (RA) in everyday life. METHOD: An explorative design with the grounded theory approach was used by interviewing 16 informants with RA. RESULTS: The generated theoretical model emerged in a core category- Striving for a good life with two categories; making use of personal resources and grasping for support from others, which formed the base of managing RA. When relating these categories together, four dimensions emerged which characterised patients’ different ways of managing RA: mastering, relying, struggling and being resigned. DISCUSSION: The management of RA incorporated the use of personal resources and the grasping for support from others. Both self-management strategies and patients’ need of support were highlighted as aspects that were of importance when managing RA. Patients’ experiences of their need of support to manage RA give extended knowledge that is of importance for nurses and other healthcare providers. The relationship between patients and healthcare providers is always the key to a good encounter. Interventions to increase self-management in RA have to incorporate this knowledge when trying to increase patients’ self-efficacy and with their experience of support.
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spelling pubmed-32278622011-12-01 “Striving for a Good Life” – The Management of Rheumatoid Arthritis as Experienced by Patients Bergsten, Ulrika Bergman, Stefan Fridlund, Bengt Arvidsson, Barbro Open Nurs J Article AIM: To generate a theoretical model how patients experience their management of rheumatoid arthritis (RA) in everyday life. METHOD: An explorative design with the grounded theory approach was used by interviewing 16 informants with RA. RESULTS: The generated theoretical model emerged in a core category- Striving for a good life with two categories; making use of personal resources and grasping for support from others, which formed the base of managing RA. When relating these categories together, four dimensions emerged which characterised patients’ different ways of managing RA: mastering, relying, struggling and being resigned. DISCUSSION: The management of RA incorporated the use of personal resources and the grasping for support from others. Both self-management strategies and patients’ need of support were highlighted as aspects that were of importance when managing RA. Patients’ experiences of their need of support to manage RA give extended knowledge that is of importance for nurses and other healthcare providers. The relationship between patients and healthcare providers is always the key to a good encounter. Interventions to increase self-management in RA have to incorporate this knowledge when trying to increase patients’ self-efficacy and with their experience of support. Bentham Open 2011-11-04 /pmc/articles/PMC3227862/ /pubmed/22135717 http://dx.doi.org/10.2174/1874434601105010095 Text en © Bergsten et al.; Licensee Bentham Open. http://creativecommons.org/licenses/by-nc/3.0/ This is an open access article licensed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/3.0/) which permits unrestricted, non-commercial use, distribution and reproduction in any medium, provided the work is properly cited.
spellingShingle Article
Bergsten, Ulrika
Bergman, Stefan
Fridlund, Bengt
Arvidsson, Barbro
“Striving for a Good Life” – The Management of Rheumatoid Arthritis as Experienced by Patients
title “Striving for a Good Life” – The Management of Rheumatoid Arthritis as Experienced by Patients
title_full “Striving for a Good Life” – The Management of Rheumatoid Arthritis as Experienced by Patients
title_fullStr “Striving for a Good Life” – The Management of Rheumatoid Arthritis as Experienced by Patients
title_full_unstemmed “Striving for a Good Life” – The Management of Rheumatoid Arthritis as Experienced by Patients
title_short “Striving for a Good Life” – The Management of Rheumatoid Arthritis as Experienced by Patients
title_sort “striving for a good life” – the management of rheumatoid arthritis as experienced by patients
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3227862/
https://www.ncbi.nlm.nih.gov/pubmed/22135717
http://dx.doi.org/10.2174/1874434601105010095
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