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Dignity and Deferral Narratives as Strategies in Facilitated Technology-Based Support Groups for People with Advanced Cancer

This paper examines the value of facilitated telephone and online support groups for palliative care. Telephone interviews were conducted with twenty people living with advanced cancer who had participated in either a telephone or online support group facilitated by the Cancer Council Victoria, Melb...

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Detalles Bibliográficos
Autores principales: Street, Annette F., Wakelin, Kate, Hordern, Amanda, Bruce, Nicola, Horey, Dell
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Hindawi Publishing Corporation 2012
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3317195/
https://www.ncbi.nlm.nih.gov/pubmed/22530115
http://dx.doi.org/10.1155/2012/647836
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author Street, Annette F.
Wakelin, Kate
Hordern, Amanda
Bruce, Nicola
Horey, Dell
author_facet Street, Annette F.
Wakelin, Kate
Hordern, Amanda
Bruce, Nicola
Horey, Dell
author_sort Street, Annette F.
collection PubMed
description This paper examines the value of facilitated telephone and online support groups for palliative care. Telephone interviews were conducted with twenty people living with advanced cancer who had participated in either a telephone or online support group facilitated by the Cancer Council Victoria, Melbourne, Australia. Two dominant participant narratives emerged: a focus on dying with dignity or an interest in deferring discussion of death and dying to focus on the present. Despite the different approaches, participants found the technology-based support groups to be accessible and safe environments in which to discuss difficult topics in privacy. Technology-based strategies provide opportunities for health professionals to provide social and emotional care to more people by moving beyond individualised care and facilitate peer-to-peer support at the end of life, especially to those with specific needs. Such options are feasible for palliative care services to set up and acceptable to a group of clients, especially for younger clients or those socially or geographically isolated.
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spelling pubmed-33171952012-04-23 Dignity and Deferral Narratives as Strategies in Facilitated Technology-Based Support Groups for People with Advanced Cancer Street, Annette F. Wakelin, Kate Hordern, Amanda Bruce, Nicola Horey, Dell Nurs Res Pract Research Article This paper examines the value of facilitated telephone and online support groups for palliative care. Telephone interviews were conducted with twenty people living with advanced cancer who had participated in either a telephone or online support group facilitated by the Cancer Council Victoria, Melbourne, Australia. Two dominant participant narratives emerged: a focus on dying with dignity or an interest in deferring discussion of death and dying to focus on the present. Despite the different approaches, participants found the technology-based support groups to be accessible and safe environments in which to discuss difficult topics in privacy. Technology-based strategies provide opportunities for health professionals to provide social and emotional care to more people by moving beyond individualised care and facilitate peer-to-peer support at the end of life, especially to those with specific needs. Such options are feasible for palliative care services to set up and acceptable to a group of clients, especially for younger clients or those socially or geographically isolated. Hindawi Publishing Corporation 2012 2012-02-22 /pmc/articles/PMC3317195/ /pubmed/22530115 http://dx.doi.org/10.1155/2012/647836 Text en Copyright © 2012 Annette F. Street et al. https://creativecommons.org/licenses/by/3.0/ This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Research Article
Street, Annette F.
Wakelin, Kate
Hordern, Amanda
Bruce, Nicola
Horey, Dell
Dignity and Deferral Narratives as Strategies in Facilitated Technology-Based Support Groups for People with Advanced Cancer
title Dignity and Deferral Narratives as Strategies in Facilitated Technology-Based Support Groups for People with Advanced Cancer
title_full Dignity and Deferral Narratives as Strategies in Facilitated Technology-Based Support Groups for People with Advanced Cancer
title_fullStr Dignity and Deferral Narratives as Strategies in Facilitated Technology-Based Support Groups for People with Advanced Cancer
title_full_unstemmed Dignity and Deferral Narratives as Strategies in Facilitated Technology-Based Support Groups for People with Advanced Cancer
title_short Dignity and Deferral Narratives as Strategies in Facilitated Technology-Based Support Groups for People with Advanced Cancer
title_sort dignity and deferral narratives as strategies in facilitated technology-based support groups for people with advanced cancer
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3317195/
https://www.ncbi.nlm.nih.gov/pubmed/22530115
http://dx.doi.org/10.1155/2012/647836
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