Cargando…

Consenting to health record linkage: evidence from a multi-purpose longitudinal survey of a general population

BACKGROUND: The British Household Panel Survey (BHPS) is the first long-running UK longitudinal survey with a non-medical focus and a sample covering the whole age range to have asked for permission to link to a range of administrative health records. This study determines whether informed consent l...

Descripción completa

Detalles Bibliográficos
Autores principales:	Knies, Gundi, Burton, Jonathan, Sala, Emanuela
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2012
Materias:	Research Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3330014/ https://www.ncbi.nlm.nih.gov/pubmed/22390416 http://dx.doi.org/10.1186/1472-6963-12-52

Ejemplares similares

Analysis of four studies in a comparative framework reveals: health linkage consent rates on British cohort studies higher than on UK household panel surveys
por: Knies, Gundi, et al.
Publicado: (2014)

Effects of Income and Material Deprivation on Children’s Life Satisfaction: Evidence from Longitudinal Data for England (2009–2018)
por: Knies, Gundi
Publicado: (2021)

Record linkage research and informed consent: who consents?
por: Huang, Nicole, et al.
Publicado: (2007)

Using consented health record linkage in a longitudinal cohort study
por: Tingay, Karen, et al.
Publicado: (2017)

Local unemployment changes the springboard effect of low pay: Evidence from England
por: Plum, Alexander, et al.
Publicado: (2019)

A novel metadata management model to capture consent for record linkage in longitudinal research studies
por: McMahon, Christiana, et al.
Publicado: (2017)

Life satisfaction and mental health from age 17 to 21 years in a general population sample
por: Marquez, Jose, et al.
Publicado: (2022)

Patient Consent Management by a Purpose-Based Consent Model for Electronic Health Record Based on Blockchain Technology
por: Tith, Dara, et al.
Publicado: (2020)

Multimorbidity is associated with the income, education, employment and health domains of area-level deprivation in adult residents in the UK
por: Knies, Gundi, et al.
Publicado: (2022)

The Effect of Framing and Placement on Linkage Consent
por: Sakshaug, Joseph W, et al.
Publicado: (2019)

General purpose tools for longitudinal beam dynamics studies
por: Lauro, Fabiana
Publicado: (2023)

Record linkage to enhance consented cohort and routinely collected health data from a UK birth cohort
por: Tingay, Karen Susan, et al.
Publicado: (2019)

Self-Reported Lifetime History of Eating Disorders and Mortality in the General Population: A Canadian Population Survey with Record Linkage
por: Pedram, Pardis, et al.
Publicado: (2021)

Resilience does matter: evidence from a 10-year cohort record linkage study
por: Elliott, Alison M, et al.
Publicado: (2014)

Survey of advanced general-purpose software for robot manipulators
por: Latombe, J C
Publicado: (1983)

Linkage of people experiencing homeless using two consent models.
por: Trubey, Rob, et al.
Publicado: (2022)

Consent for audio-video recording of informed consent process in rural South India
por: Chauhan, Ramesh Chand, et al.
Publicado: (2015)

FDup: a framework for general-purpose and efficient entity deduplication of record collections
por: De Bonis, Michele, et al.
Publicado: (2022)

Readiness of the Belgian network of sentinel general practitioners to deliver electronic health record data for surveillance purposes: results of survey study
por: Boffin, Nicole, et al.
Publicado: (2010)

Probabilistic record linkage
por: Sayers, Adrian, et al.
Publicado: (2016)

Patients’ perceived purpose of clinical informed consent: Mill’s individual autonomy model is preferred
por: Hammami, Muhammad M, et al.
Publicado: (2014)

Public opinion on sharing data from health services for clinical and research purposes without explicit consent: an anonymous online survey in the UK
por: Jones, Linda A, et al.
Publicado: (2022)

Linking survey responses and administrative records without respondent consent to link; a discussion paper
por: Frances, Burns
Publicado: (2017)

A survey of the current practice of the informed consent process in general surgery in the Netherlands
por: Leclercq, Wouter KG, et al.
Publicado: (2013)

A method of record linkage.
por: Oshima, A, et al.
Publicado: (1979)

Multi-purpose SLM-light-sheet microscope
por: Garbellotto, Chiara, et al.
Publicado: (2018)

Patients’ Willingness to Provide Their Clinical Data for Research Purposes and Acceptance of Different Consent Models: Findings From a Representative Survey of Patients With Cancer
por: Köngeter, Anja, et al.
Publicado: (2022)

Consent to data linkage in a large online epidemiological survey of 18–23 year old Australian women in 2012–13
por: Graves, Anna, et al.
Publicado: (2019)

Using administrative records to support the linkage of census data: protocol for building a longitudinal infrastructure of U.S. census records
por: Alexander, J. Trent, et al.
Publicado: (2023)

General purpose detectors at the LHC
por: Virdee, Tejinder S
Publicado: (2004)

The LHC general purpose detectors
por: Bloch, Philippe
Publicado: (2006)

Efficient Record Linkage Algorithms Using Complete Linkage Clustering
por: Mamun, Abdullah-Al, et al.
Publicado: (2016)

Business datasets and record linkage: Correlates of linkage and estimating risks of non-linkage biases
por: Moore, Jamie, et al.
Publicado: (2017)

Opt-In and Opt-Out Consent Procedures for the Reuse of Routinely Recorded Health Data in Scientific Research and Their Consequences for Consent Rate and Consent Bias: Systematic Review
por: de Man, Yvonne, et al.
Publicado: (2023)

Efficient population record linkage with temporal and spatial constraints.
por: Procter, Alexandra, et al.
Publicado: (2022)

Efficient population record linkage with temporal and spatial constraints.
por: Nanayakkara, Charini, et al.
Publicado: (2022)

Making consent for electronic health and social care data research fit for purpose in the 21st century
por: Heslop, Philip Anthony, et al.
Publicado: (2020)

The Effects of Online Access to General Practice Medical Records Perceived by Patients: Longitudinal Survey Study
por: Thielmann, Rosa R L C, et al.
Publicado: (2023)

A multi-purpose technology
por: Alizée Dauvergne
Publicado: (2010)

Respecting Autonomy Over Time: Policy and Empirical Evidence on Re‐Consent in Longitudinal Biomedical Research
por: Wallace, Susan E, et al.
Publicado: (2015)

Cannot write session to /tmp/vufind_sessions/sess_1311t2fcab7aujmur1krbgrnne