The need for worldwide policy and action plans for rare diseases

There are more than 6000 rare diseases (defined as affecting <5/10 000 individuals in Europe, <200 000 people in the United States). The rarity can create problems including: difficulties in obtaining timely, accurate diagnoses; lack of experienced healthcare providers; useful, reliable and ti...

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Detalles Bibliográficos
Autores principales: Forman, John, Taruscio, Domenica, Llera, Virginia A, Barrera, Luis A, Coté, Timothy R, Edfjäll, Catarina, Gavhed, Désirée, Haffner, Marlene E, Nishimura, Yukiko, Posada, Manuel, Tambuyzer, Erik, Groft, Stephen C, Henter, Jan-Inge
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Blackwell Publishing Ltd 2012
Materias:
Viewpoint Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3443385/
https://www.ncbi.nlm.nih.gov/pubmed/22519914
http://dx.doi.org/10.1111/j.1651-2227.2012.02705.x

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