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Local and National Advocacy Support
Decisions by third-party payors that are restricting delivery of appropriate IgG treatment for primary immunodeficiency disease (PIDD) are summoning action from patients, physicians, and their organizations to ensure that high quality treatment remains accessible. Some of the strongest advocacy to d...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer US
2012
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3459078/ https://www.ncbi.nlm.nih.gov/pubmed/22810627 http://dx.doi.org/10.1007/s10875-012-9736-6 |
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author | Shapiro, Ralph S. Boyle, Marcia Perez, Elena E. |
author_facet | Shapiro, Ralph S. Boyle, Marcia Perez, Elena E. |
author_sort | Shapiro, Ralph S. |
collection | PubMed |
description | Decisions by third-party payors that are restricting delivery of appropriate IgG treatment for primary immunodeficiency disease (PIDD) are summoning action from patients, physicians, and their organizations to ensure that high quality treatment remains accessible. Some of the strongest advocacy to date is from patient organizations, such as the Immune Deficiency Foundation (IDF), which strive to educate stakeholders on key issues that determine patient access to appropriate IgG treatment. These issues include the ability to choose the appropriate site of care based on a patient’s experience and circumstance and greater awareness of product choice. Advocacy by physicians on these issues at the local level is needed, as are national efforts by organizations such as the American Academy of Allergy, Asthma & Immunology and their regional societies. |
format | Online Article Text |
id | pubmed-3459078 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2012 |
publisher | Springer US |
record_format | MEDLINE/PubMed |
spelling | pubmed-34590782012-11-09 Local and National Advocacy Support Shapiro, Ralph S. Boyle, Marcia Perez, Elena E. J Clin Immunol Article Decisions by third-party payors that are restricting delivery of appropriate IgG treatment for primary immunodeficiency disease (PIDD) are summoning action from patients, physicians, and their organizations to ensure that high quality treatment remains accessible. Some of the strongest advocacy to date is from patient organizations, such as the Immune Deficiency Foundation (IDF), which strive to educate stakeholders on key issues that determine patient access to appropriate IgG treatment. These issues include the ability to choose the appropriate site of care based on a patient’s experience and circumstance and greater awareness of product choice. Advocacy by physicians on these issues at the local level is needed, as are national efforts by organizations such as the American Academy of Allergy, Asthma & Immunology and their regional societies. Springer US 2012-07-19 2012 /pmc/articles/PMC3459078/ /pubmed/22810627 http://dx.doi.org/10.1007/s10875-012-9736-6 Text en © The Author(s) 2012 https://creativecommons.org/licenses/by/4.0/ This article is distributed under the terms of the Creative Commons Attribution License which permits any use, distribution, and reproduction in any medium, provided the original author(s) and the source are credited. |
spellingShingle | Article Shapiro, Ralph S. Boyle, Marcia Perez, Elena E. Local and National Advocacy Support |
title | Local and National Advocacy Support |
title_full | Local and National Advocacy Support |
title_fullStr | Local and National Advocacy Support |
title_full_unstemmed | Local and National Advocacy Support |
title_short | Local and National Advocacy Support |
title_sort | local and national advocacy support |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3459078/ https://www.ncbi.nlm.nih.gov/pubmed/22810627 http://dx.doi.org/10.1007/s10875-012-9736-6 |
work_keys_str_mv | AT shapiroralphs localandnationaladvocacysupport AT boylemarcia localandnationaladvocacysupport AT perezelenae localandnationaladvocacysupport |