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Psycho-social outcome in liver transplanted children: beware of emotional self-assessment!

BACKGROUND: Psycho-social outcome in children after liver transplantation (LT) is known to be inferior to age-related peers. Yet, when children and their parents are questioned by their nurse or physician about the child’s psycho-social well-being, the answers usually are very positive. We hypothesi...

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Autores principales: Calinescu, Ana Maria, McLin, Valérie A, Belli, Dominque, Wildhaber, Barbara E
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2012
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3462715/
https://www.ncbi.nlm.nih.gov/pubmed/22883139
http://dx.doi.org/10.1186/1824-7288-38-37
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author Calinescu, Ana Maria
McLin, Valérie A
Belli, Dominque
Wildhaber, Barbara E
author_facet Calinescu, Ana Maria
McLin, Valérie A
Belli, Dominque
Wildhaber, Barbara E
author_sort Calinescu, Ana Maria
collection PubMed
description BACKGROUND: Psycho-social outcome in children after liver transplantation (LT) is known to be inferior to age-related peers. Yet, when children and their parents are questioned by their nurse or physician about the child’s psycho-social well-being, the answers usually are very positive. We hypothesized that patients and their parents after LT report their psycho-social well-being too enthusiastically when enquired by their personal care takers. METHODS: Inclusion criteria: LT at the Children’s University Hospital of Geneva 1992–2007, age >3 years, <16 years, time after LT >2 years. Children and their parents were questioned by their well-known, familiar nurse at the annual follow up visit about their personal well-being. To allow for evaluation of answers, scores (good, medium, bad) were attributed to the different questions. 46 children were included in the study. RESULTS: Mean age at enquiry was 9.7 years (SD 4 years), mean time after LT was 7.5 years (SD 4.2 years). The different themes were reported as good for: parent–child relationship (83%), relationship with peers (98%), relation with siblings (39%), sport activities (54%), play activities (78%), school performance (87%), expression skills (67%), and general behavior (89%). CONCLUSION: Most of our LT children and their parents consider, during a personal interview with a closely related, familiar nurse, that the child’s psycho-social outcome is good. Yet, it is generally acknowledged that children after LT have negatively altered psycho-social outcomes. Thus, emotionally influenced reports about psycho-social outcome in children after LT must be looked at with care.
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spelling pubmed-34627152012-10-03 Psycho-social outcome in liver transplanted children: beware of emotional self-assessment! Calinescu, Ana Maria McLin, Valérie A Belli, Dominque Wildhaber, Barbara E Ital J Pediatr Research BACKGROUND: Psycho-social outcome in children after liver transplantation (LT) is known to be inferior to age-related peers. Yet, when children and their parents are questioned by their nurse or physician about the child’s psycho-social well-being, the answers usually are very positive. We hypothesized that patients and their parents after LT report their psycho-social well-being too enthusiastically when enquired by their personal care takers. METHODS: Inclusion criteria: LT at the Children’s University Hospital of Geneva 1992–2007, age >3 years, <16 years, time after LT >2 years. Children and their parents were questioned by their well-known, familiar nurse at the annual follow up visit about their personal well-being. To allow for evaluation of answers, scores (good, medium, bad) were attributed to the different questions. 46 children were included in the study. RESULTS: Mean age at enquiry was 9.7 years (SD 4 years), mean time after LT was 7.5 years (SD 4.2 years). The different themes were reported as good for: parent–child relationship (83%), relationship with peers (98%), relation with siblings (39%), sport activities (54%), play activities (78%), school performance (87%), expression skills (67%), and general behavior (89%). CONCLUSION: Most of our LT children and their parents consider, during a personal interview with a closely related, familiar nurse, that the child’s psycho-social outcome is good. Yet, it is generally acknowledged that children after LT have negatively altered psycho-social outcomes. Thus, emotionally influenced reports about psycho-social outcome in children after LT must be looked at with care. BioMed Central 2012-08-10 /pmc/articles/PMC3462715/ /pubmed/22883139 http://dx.doi.org/10.1186/1824-7288-38-37 Text en Copyright ©2012 Calinescu et al.; licensee BioMed Central Ltd. http://creativecommons.org/licenses/by/2.0 This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Research
Calinescu, Ana Maria
McLin, Valérie A
Belli, Dominque
Wildhaber, Barbara E
Psycho-social outcome in liver transplanted children: beware of emotional self-assessment!
title Psycho-social outcome in liver transplanted children: beware of emotional self-assessment!
title_full Psycho-social outcome in liver transplanted children: beware of emotional self-assessment!
title_fullStr Psycho-social outcome in liver transplanted children: beware of emotional self-assessment!
title_full_unstemmed Psycho-social outcome in liver transplanted children: beware of emotional self-assessment!
title_short Psycho-social outcome in liver transplanted children: beware of emotional self-assessment!
title_sort psycho-social outcome in liver transplanted children: beware of emotional self-assessment!
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3462715/
https://www.ncbi.nlm.nih.gov/pubmed/22883139
http://dx.doi.org/10.1186/1824-7288-38-37
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