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One step forward in health promotion

Thalassemias are inherited blood disorders. In 2011, there was no clear situation regarding the number of thalassemia or other hemoglobinopathy patients in Romania. The luck of information has led to an increased number of patients registered by Fundeni Hospital, Bucharest in the last years. The mai...

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Autor principal: Rosu, M
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Carol Davila University Press 2012
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3465009/
https://www.ncbi.nlm.nih.gov/pubmed/23049643
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author Rosu, M
author_facet Rosu, M
author_sort Rosu, M
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description Thalassemias are inherited blood disorders. In 2011, there was no clear situation regarding the number of thalassemia or other hemoglobinopathy patients in Romania. The luck of information has led to an increased number of patients registered by Fundeni Hospital, Bucharest in the last years. The main goal of this article is to underline the importance of implementing a screening program in Romania for thalassemia and other hemoglobinopathies, parallel with an awareness program. The importance of this objective is strongly supported by the following example: in Sardinia, thalassemia major was present in one out of 250 births, and has declined to one out of 4000 births after they implemented the screening program. The article is written by Monica Rosu, a participant to the World Wide Opportunities for Woman course, held in Canada, in 1999 and states one of the first results of thalassemia awareness in Romania with a positive impact on the patient’s life, registering the following results: 2000: A website in Romanian language regarding thalassemias and addressed to patients was created. 2005: The Association of People with thalassemia major was founded and become member of Thalassemia International Federation 2011: Thalassemia major patients from Romania have access to free treatment and the latest medical oral chelator, Exjade. The association participated in various meetings addressed to patients and doctors as well, created their own website, held workshops, fought together for an improved quality of life for themselves, for healthy people (possible thalassemia carriers) and for all Romanian children. Abbreviations: WWOW – World Wide Opportunities for Woman, APTM – Association of People with thalassemia major, CVS-Chorionic Villus Sampling, TIF – Thalassemia International Foundation
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spelling pubmed-34650092012-11-15 One step forward in health promotion Rosu, M J Med Life Young Researchers Area Thalassemias are inherited blood disorders. In 2011, there was no clear situation regarding the number of thalassemia or other hemoglobinopathy patients in Romania. The luck of information has led to an increased number of patients registered by Fundeni Hospital, Bucharest in the last years. The main goal of this article is to underline the importance of implementing a screening program in Romania for thalassemia and other hemoglobinopathies, parallel with an awareness program. The importance of this objective is strongly supported by the following example: in Sardinia, thalassemia major was present in one out of 250 births, and has declined to one out of 4000 births after they implemented the screening program. The article is written by Monica Rosu, a participant to the World Wide Opportunities for Woman course, held in Canada, in 1999 and states one of the first results of thalassemia awareness in Romania with a positive impact on the patient’s life, registering the following results: 2000: A website in Romanian language regarding thalassemias and addressed to patients was created. 2005: The Association of People with thalassemia major was founded and become member of Thalassemia International Federation 2011: Thalassemia major patients from Romania have access to free treatment and the latest medical oral chelator, Exjade. The association participated in various meetings addressed to patients and doctors as well, created their own website, held workshops, fought together for an improved quality of life for themselves, for healthy people (possible thalassemia carriers) and for all Romanian children. Abbreviations: WWOW – World Wide Opportunities for Woman, APTM – Association of People with thalassemia major, CVS-Chorionic Villus Sampling, TIF – Thalassemia International Foundation Carol Davila University Press 2012-09-15 2012-09-25 /pmc/articles/PMC3465009/ /pubmed/23049643 Text en ©Carol Davila University Press http://creativecommons.org/licenses/by/2.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Young Researchers Area
Rosu, M
One step forward in health promotion
title One step forward in health promotion
title_full One step forward in health promotion
title_fullStr One step forward in health promotion
title_full_unstemmed One step forward in health promotion
title_short One step forward in health promotion
title_sort one step forward in health promotion
topic Young Researchers Area
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3465009/
https://www.ncbi.nlm.nih.gov/pubmed/23049643
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