EPIRARE survey on activities and needs of rare disease registries in the European Union

Detalles Bibliográficos
Autores principales: Taruscio, Domenica, Gainotti, Sabina, Vittozzi, Luciano, Bianchi, Fabrizio, Ensini, Monica, Posada, Manuel
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2012
Materias:
Meeting Abstract
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3504534/
http://dx.doi.org/10.1186/1750-1172-7-S2-A22
_version_ 1782250649562382336
author Taruscio, Domenica
Gainotti, Sabina
Vittozzi, Luciano
Bianchi, Fabrizio
Ensini, Monica
Posada, Manuel
author_facet Taruscio, Domenica
Gainotti, Sabina
Vittozzi, Luciano
Bianchi, Fabrizio
Ensini, Monica
Posada, Manuel
author_sort Taruscio, Domenica
collection PubMed
description
format Online
Article
Text
id pubmed-3504534
institution National Center for Biotechnology Information
language English
publishDate 2012
publisher BioMed Central
record_format MEDLINE/PubMed
spelling pubmed-35045342012-11-27 EPIRARE survey on activities and needs of rare disease registries in the European Union Taruscio, Domenica Gainotti, Sabina Vittozzi, Luciano Bianchi, Fabrizio Ensini, Monica Posada, Manuel Orphanet J Rare Dis Meeting Abstract BioMed Central 2012-11-22 /pmc/articles/PMC3504534/ http://dx.doi.org/10.1186/1750-1172-7-S2-A22 Text en Copyright ©2012 Taruscio et al; licensee BioMed Central Ltd. http://creativecommons.org/licenses/by/2.0 This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Meeting Abstract
Taruscio, Domenica
Gainotti, Sabina
Vittozzi, Luciano
Bianchi, Fabrizio
Ensini, Monica
Posada, Manuel
EPIRARE survey on activities and needs of rare disease registries in the European Union
title EPIRARE survey on activities and needs of rare disease registries in the European Union
title_full EPIRARE survey on activities and needs of rare disease registries in the European Union
title_fullStr EPIRARE survey on activities and needs of rare disease registries in the European Union
title_full_unstemmed EPIRARE survey on activities and needs of rare disease registries in the European Union
title_short EPIRARE survey on activities and needs of rare disease registries in the European Union
title_sort epirare survey on activities and needs of rare disease registries in the european union
topic Meeting Abstract
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3504534/
http://dx.doi.org/10.1186/1750-1172-7-S2-A22
work_keys_str_mv AT tarusciodomenica epiraresurveyonactivitiesandneedsofrarediseaseregistriesintheeuropeanunion
AT gainottisabina epiraresurveyonactivitiesandneedsofrarediseaseregistriesintheeuropeanunion
AT vittozziluciano epiraresurveyonactivitiesandneedsofrarediseaseregistriesintheeuropeanunion
AT bianchifabrizio epiraresurveyonactivitiesandneedsofrarediseaseregistriesintheeuropeanunion
AT ensinimonica epiraresurveyonactivitiesandneedsofrarediseaseregistriesintheeuropeanunion
AT posadamanuel epiraresurveyonactivitiesandneedsofrarediseaseregistriesintheeuropeanunion

Ejemplares similares