Cargando…

The political empowerment of rare disease patient advocates both at EU and national level

Detalles Bibliográficos
Autor principal:	Andersen, Terkel
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2012
Materias:	Meeting Abstract
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3504535/ http://dx.doi.org/10.1186/1750-1172-7-S2-A33

Ejemplares similares

Rare family days: a family empowerment programme
por: Lind, Ane, et al.
Publicado: (2012)

The psychological processes involved in patient empowerment
por: Aujoulat, Isabelle, et al.
Publicado: (2012)

Developing a national plan for rare diseases in Germany through concerted action: the national action league for people with rare diseases
por: Héon-Klin, Véronique, et al.
Publicado: (2012)

Family Caregivers as Advocates
por: Whiting, C Grace
Publicado: (2021)

Perspective of an Advocate - political advocacy in African cancer dialogue
por: Asante-Shongwe, Kwanele
Publicado: (2013)

Mental illness: a political perspective
por: Cassis, Ignazio
Publicado: (2013)

Political regulations to advance health care system
por: Golubnitschaja, Olga
Publicado: (2014)

The emergence of the cause of rare diseases and rare disease patients’ movement
por: Huyard, Caroline
Publicado: (2012)

Leveraging existing opportunities for improved Orphan Drug approval in the EU
por: Edfjäll, Catarina
Publicado: (2012)

An investigation of PCT and EU patents on helmets to improve thermal comfort
por: Kwon, JuYoun
Publicado: (2015)

EuSoMII Annual Meeting 2019 Book of abstracts
Publicado: (2020)

Evidence based politics: knowing and acting today to shape tomorrow
por: Cassis, Ignazio
Publicado: (2013)

EuSoMII Virtual Annual Meeting 2020 Book of Abstracts
Publicado: (2021)

Coordination, framing and innovation: the political sophistication of public health advocates in Ireland
por: Lesch, Matthew, et al.
Publicado: (2021)

EuSoMII Virtual Annual Meeting 2021 ‘Connections’ Book of Abstracts
Publicado: (2022)

A patient advocating for transparent science in rare disease research
por: Yang, Richard Rui
Publicado: (2023)

Level of patients' satisfaction toward National Health Insurance in Istanbul City-Turkey
por: Ali Jadoo, Saad Ahmed, et al.
Publicado: (2012)

EuSoMII Annual Meeting 2022 ‘Your portal to AI’ Book of Abstracts
Publicado: (2023)

The Dutch experience: reciprocal influences between (socio-)political processes and casemix systems
por: van Poucke, Anna
Publicado: (2007)

PPPM health care - United States style: "political, profitable, and profligate medicine"
por: Andrews, Russell J
Publicado: (2014)

PPPM health care - United States style: political, profitable, and profligate medicine
por: Andrews, Russell J
Publicado: (2014)

IL-18 expression in synovial biopsies of patients with active rheumatoid arthritis is associated with enhanced levels of both IL-1 and TNFα
por: Joosten, LAB, et al.
Publicado: (2002)

Rare thyroid diseases
por: Łącka, Katarzyna
Publicado: (2013)

The Development of a Stakeholder Member Organization to Advocate for Geriatrics Education
por: Waters, Leland, et al.
Publicado: (2020)

Advocating for both Environmental and Clinical Approaches to Control Human Strongyloidiasis
por: Beknazarova, Meruyert, et al.
Publicado: (2016)

A coordinated EU approach to informed access decisions: CAVOD process proposals – the possibility to turn concept into reality?
por: Hughes-Wilson, Wills
Publicado: (2012)

Vaccination risks in children with rare diseases
por: Barberi, Ignazio, et al.
Publicado: (2015)

Evaluating an Integrated APS–Elder Advocate Intervention Model in the State of Maine
por: Burnes, David, et al.
Publicado: (2020)

Advocates for African American Elders: Engaging Older Adults in Education and Research
por: Lincoln, Karen
Publicado: (2020)

Sex workers as peer health advocates: community empowerment and transformative learning through a Canadian pilot program
por: Benoit, Cecilia, et al.
Publicado: (2017)

Implementation of a multi-level intervention in underserved communities: Prevention RCT in the Cherokee Nation
por: Komro, Kelli A, et al.
Publicado: (2015)

Professional clinical guidelines for rare diseases: methodology
por: Kremp, Odile, et al.
Publicado: (2012)

Patient advocates respond to ‘Utilizing Patient Advocates…’ by Feeney et al
por: Riggare, Sara, et al.
Publicado: (2020)

Characterizing opioid use disorder patients who have received medication trials with both buprenorphine and methadone
por: Wilder, Christine M, et al.
Publicado: (2015)

The second French plan for rare diseases 2011-2014
por: Garcia, Alain, et al.
Publicado: (2012)

Compassionate use programmes for rare diseases: proposals for actions
por: Houÿez, François, et al.
Publicado: (2012)

Approaches in rare diseases and pediatrics across international boundaries
por: Liebman, Michael
Publicado: (2012)

Molecular dissection of human B-cell tolerance – insights from patients with rare genetic diseases
por: Morbach, Henner, et al.
Publicado: (2014)

Setting the global health agenda: The influence of advocates and ideas on political priority for maternal and newborn survival
por: Smith, Stephanie L., et al.
Publicado: (2016)

Communicating Guatemalan Villagers’ Experience of Aging Through Photography of Local Aging Advocates
por: Perkinson, Margaret
Publicado: (2020)

Cannot write session to /tmp/vufind_sessions/sess_pnav4afqf0ggh89cg6mfb8f2vv