Listening to children’s and parents’ voices: using patient reported outcomes to empower patients with orphan diseases and their parents

Detalles Bibliográficos
Autor principal: Abetz-Webb, Linda
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2012
Materias:
Meeting Abstract
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3504604/
http://dx.doi.org/10.1186/1750-1172-7-S2-A30
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author Abetz-Webb, Linda
author_facet Abetz-Webb, Linda
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spelling pubmed-35046042012-11-27 Listening to children’s and parents’ voices: using patient reported outcomes to empower patients with orphan diseases and their parents Abetz-Webb, Linda Orphanet J Rare Dis Meeting Abstract BioMed Central 2012-11-22 /pmc/articles/PMC3504604/ http://dx.doi.org/10.1186/1750-1172-7-S2-A30 Text en Copyright ©2012 Abetz-Webb; licensee BioMed Central Ltd. http://creativecommons.org/licenses/by/2.0 This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Meeting Abstract
Abetz-Webb, Linda
Listening to children’s and parents’ voices: using patient reported outcomes to empower patients with orphan diseases and their parents
title Listening to children’s and parents’ voices: using patient reported outcomes to empower patients with orphan diseases and their parents
title_full Listening to children’s and parents’ voices: using patient reported outcomes to empower patients with orphan diseases and their parents
title_fullStr Listening to children’s and parents’ voices: using patient reported outcomes to empower patients with orphan diseases and their parents
title_full_unstemmed Listening to children’s and parents’ voices: using patient reported outcomes to empower patients with orphan diseases and their parents
title_short Listening to children’s and parents’ voices: using patient reported outcomes to empower patients with orphan diseases and their parents
title_sort listening to children’s and parents’ voices: using patient reported outcomes to empower patients with orphan diseases and their parents
topic Meeting Abstract
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3504604/
http://dx.doi.org/10.1186/1750-1172-7-S2-A30
work_keys_str_mv AT abetzwebblinda listeningtochildrensandparentsvoicesusingpatientreportedoutcomestoempowerpatientswithorphandiseasesandtheirparents

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