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Financial and social impact of supporting a haematological cancer survivor
Support persons of haematological cancer survivors may be faced with unique challenges due to the course of these diseases and the treatments required. This study aimed to examine the social and financial impacts associated with their role. Eight hundred adult survivors of haematological cancer with...
Autores principales: | , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Blackwell Publishing Ltd
2012
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3508421/ https://www.ncbi.nlm.nih.gov/pubmed/22070745 http://dx.doi.org/10.1111/j.1365-2354.2011.01302.x |
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author | CAREY, M PAUL, C CAMERON, E LYNAGH, M HALL, A TZELEPIS, F |
author_facet | CAREY, M PAUL, C CAMERON, E LYNAGH, M HALL, A TZELEPIS, F |
author_sort | CAREY, M |
collection | PubMed |
description | Support persons of haematological cancer survivors may be faced with unique challenges due to the course of these diseases and the treatments required. This study aimed to examine the social and financial impacts associated with their role. Eight hundred adult survivors of haematological cancer within 3 years of diagnosis were invited via an Australian state population-based cancer registry to complete a survey. Survivors were mailed two questionnaire packages, one for themselves and one for their primary support person. Non-respondents were mailed reminders via the survivor after 3 weeks. One hundred and eighty-two support persons completed the questionnaire (85% response rate). Of these, 67 (46%) support persons reported having at least one personal expense and 91 (52%) experienced at least one financial impact. Male support persons and support persons of survivors in active treatment reported experiencing more personal expenses than other support persons. Older participants reported fewer financial consequences. A greater number of social impacts were reported by those born outside Australia, those who had to relocate for treatment and support persons of survivors in active treatment. Future research should focus on practical solutions to reducing these impacts on support persons. |
format | Online Article Text |
id | pubmed-3508421 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2012 |
publisher | Blackwell Publishing Ltd |
record_format | MEDLINE/PubMed |
spelling | pubmed-35084212012-12-06 Financial and social impact of supporting a haematological cancer survivor CAREY, M PAUL, C CAMERON, E LYNAGH, M HALL, A TZELEPIS, F Eur J Cancer Care (Engl) Original Articles Support persons of haematological cancer survivors may be faced with unique challenges due to the course of these diseases and the treatments required. This study aimed to examine the social and financial impacts associated with their role. Eight hundred adult survivors of haematological cancer within 3 years of diagnosis were invited via an Australian state population-based cancer registry to complete a survey. Survivors were mailed two questionnaire packages, one for themselves and one for their primary support person. Non-respondents were mailed reminders via the survivor after 3 weeks. One hundred and eighty-two support persons completed the questionnaire (85% response rate). Of these, 67 (46%) support persons reported having at least one personal expense and 91 (52%) experienced at least one financial impact. Male support persons and support persons of survivors in active treatment reported experiencing more personal expenses than other support persons. Older participants reported fewer financial consequences. A greater number of social impacts were reported by those born outside Australia, those who had to relocate for treatment and support persons of survivors in active treatment. Future research should focus on practical solutions to reducing these impacts on support persons. Blackwell Publishing Ltd 2012-03 2011-11-10 /pmc/articles/PMC3508421/ /pubmed/22070745 http://dx.doi.org/10.1111/j.1365-2354.2011.01302.x Text en © 2011 Blackwell Publishing Ltd http://creativecommons.org/licenses/by/2.5/ Re-use of this article is permitted in accordance with the Creative Commons Deed, Attribution 2.5, which does not permit commercial exploitation. |
spellingShingle | Original Articles CAREY, M PAUL, C CAMERON, E LYNAGH, M HALL, A TZELEPIS, F Financial and social impact of supporting a haematological cancer survivor |
title | Financial and social impact of supporting a haematological cancer survivor |
title_full | Financial and social impact of supporting a haematological cancer survivor |
title_fullStr | Financial and social impact of supporting a haematological cancer survivor |
title_full_unstemmed | Financial and social impact of supporting a haematological cancer survivor |
title_short | Financial and social impact of supporting a haematological cancer survivor |
title_sort | financial and social impact of supporting a haematological cancer survivor |
topic | Original Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3508421/ https://www.ncbi.nlm.nih.gov/pubmed/22070745 http://dx.doi.org/10.1111/j.1365-2354.2011.01302.x |
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