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“Looking back to my family”: Indigenous Australian patients’ experience of hemodialysis

BACKGROUND: In common with Indigenous populations elsewhere, Indigenous Australians have higher incidence of end-stage kidney disease (ESKD), but lower transplantation rates than their non-Indigenous counterparts. Understanding how the demands of dialysis impact on, and are impacted by, the lives of...

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Autores principales: Anderson, Kate, Cunningham, Joan, Devitt, Jeannie, Preece, Cilla, Cass, Alan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2012
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3518174/
https://www.ncbi.nlm.nih.gov/pubmed/22992225
http://dx.doi.org/10.1186/1471-2369-13-114
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author Anderson, Kate
Cunningham, Joan
Devitt, Jeannie
Preece, Cilla
Cass, Alan
author_facet Anderson, Kate
Cunningham, Joan
Devitt, Jeannie
Preece, Cilla
Cass, Alan
author_sort Anderson, Kate
collection PubMed
description BACKGROUND: In common with Indigenous populations elsewhere, Indigenous Australians have higher incidence of end-stage kidney disease (ESKD), but lower transplantation rates than their non-Indigenous counterparts. Understanding how the demands of dialysis impact on, and are impacted by, the lives of Indigenous patients may provide important insight into treatment pathways and decision-making. METHODS: We conducted semi-structured interviews in 2005–06 with 146 Indigenous and 95 non-Indigenous patients from nine hospital renal wards and 17 associated dialysis centres, which together treat the majority of Indigenous Australian ESKD patients. RESULTS: Factors influencing treatment experience included: the impacts of late diagnosis; family separations associated with relocating for treatment; the physical and psychosocial demands of hemodialysis; and ineffective communication between health care providers and patients. Although not unique to them, Indigenous patients were more likely to experience the combined effect of all factors. CONCLUSIONS: Social/situational circumstances profoundly affect Indigenous Australian dialysis patients’ ability to fully engage with treatment. This may ultimately affect their likelihood of receiving optimal treatment, including transplantation. Areas for improvement include: earlier diagnosis; improved linkages between specialist renal services and primary care in regional settings; more effective communication and patient education; and more systematic, transparent approaches to patient “compliance” in transplant and home dialysis guidelines.
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spelling pubmed-35181742012-12-11 “Looking back to my family”: Indigenous Australian patients’ experience of hemodialysis Anderson, Kate Cunningham, Joan Devitt, Jeannie Preece, Cilla Cass, Alan BMC Nephrol Research Article BACKGROUND: In common with Indigenous populations elsewhere, Indigenous Australians have higher incidence of end-stage kidney disease (ESKD), but lower transplantation rates than their non-Indigenous counterparts. Understanding how the demands of dialysis impact on, and are impacted by, the lives of Indigenous patients may provide important insight into treatment pathways and decision-making. METHODS: We conducted semi-structured interviews in 2005–06 with 146 Indigenous and 95 non-Indigenous patients from nine hospital renal wards and 17 associated dialysis centres, which together treat the majority of Indigenous Australian ESKD patients. RESULTS: Factors influencing treatment experience included: the impacts of late diagnosis; family separations associated with relocating for treatment; the physical and psychosocial demands of hemodialysis; and ineffective communication between health care providers and patients. Although not unique to them, Indigenous patients were more likely to experience the combined effect of all factors. CONCLUSIONS: Social/situational circumstances profoundly affect Indigenous Australian dialysis patients’ ability to fully engage with treatment. This may ultimately affect their likelihood of receiving optimal treatment, including transplantation. Areas for improvement include: earlier diagnosis; improved linkages between specialist renal services and primary care in regional settings; more effective communication and patient education; and more systematic, transparent approaches to patient “compliance” in transplant and home dialysis guidelines. BioMed Central 2012-09-20 /pmc/articles/PMC3518174/ /pubmed/22992225 http://dx.doi.org/10.1186/1471-2369-13-114 Text en Copyright ©2012 Anderson et al.; licensee BioMed Central Ltd. http://creativecommons.org/licenses/by/2.0 This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Research Article
Anderson, Kate
Cunningham, Joan
Devitt, Jeannie
Preece, Cilla
Cass, Alan
“Looking back to my family”: Indigenous Australian patients’ experience of hemodialysis
title “Looking back to my family”: Indigenous Australian patients’ experience of hemodialysis
title_full “Looking back to my family”: Indigenous Australian patients’ experience of hemodialysis
title_fullStr “Looking back to my family”: Indigenous Australian patients’ experience of hemodialysis
title_full_unstemmed “Looking back to my family”: Indigenous Australian patients’ experience of hemodialysis
title_short “Looking back to my family”: Indigenous Australian patients’ experience of hemodialysis
title_sort “looking back to my family”: indigenous australian patients’ experience of hemodialysis
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3518174/
https://www.ncbi.nlm.nih.gov/pubmed/22992225
http://dx.doi.org/10.1186/1471-2369-13-114
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