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Self-Management in Daily Life with Psoriasis: An Integrative Review of Patient Needs for Structured Education

The aim of this integrative review is to identify and discuss patient needs for education to support self-management in daily life with psoriasis. As psoriasis increasingly gains recognition as a serious chronic autoimmune skin disease with long-term impairment on the life course, and not mainly a c...

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Detalles Bibliográficos
Autores principales: Rasmussen, Gitte Susanne, Maindal, Helle Terkildsen, Lomborg, Kirsten
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Hindawi Publishing Corporation 2012
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3523575/
https://www.ncbi.nlm.nih.gov/pubmed/23304484
http://dx.doi.org/10.1155/2012/890860
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author Rasmussen, Gitte Susanne
Maindal, Helle Terkildsen
Lomborg, Kirsten
author_facet Rasmussen, Gitte Susanne
Maindal, Helle Terkildsen
Lomborg, Kirsten
author_sort Rasmussen, Gitte Susanne
collection PubMed
description The aim of this integrative review is to identify and discuss patient needs for education to support self-management in daily life with psoriasis. As psoriasis increasingly gains recognition as a serious chronic autoimmune skin disease with long-term impairment on the life course, and not mainly a cosmetic problem, nurses are highly challenged to develop efficient education to support patient self-management. The paper includes five stages: (1) problem identification, (2) literature search, (3) data evaluation, (4) data analysis and synthesis, and (5) presentation, based on theoretic scaffolding around the concept “need.” Nineteen of 164 original papers within nursing, medicine and psychology, and reflecting patient perspective were included. To capture the patients' cultural understanding of the implications of the disease and care, we developed an interlevel model indicating that self-experienced burden of disease and its visibility, personal conditions such as illness perception, and the patient's age at onset time are high-impact factors that should be addressed in future structured patient education programmes. The research on patient needs has hitherto focused on adults, but the problems and vulnerability associated with having a chronic and visible disease during adolescence must be acknowledged, and patient education initiatives designed for this young group are recommended.
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spelling pubmed-35235752013-01-09 Self-Management in Daily Life with Psoriasis: An Integrative Review of Patient Needs for Structured Education Rasmussen, Gitte Susanne Maindal, Helle Terkildsen Lomborg, Kirsten Nurs Res Pract Review Article The aim of this integrative review is to identify and discuss patient needs for education to support self-management in daily life with psoriasis. As psoriasis increasingly gains recognition as a serious chronic autoimmune skin disease with long-term impairment on the life course, and not mainly a cosmetic problem, nurses are highly challenged to develop efficient education to support patient self-management. The paper includes five stages: (1) problem identification, (2) literature search, (3) data evaluation, (4) data analysis and synthesis, and (5) presentation, based on theoretic scaffolding around the concept “need.” Nineteen of 164 original papers within nursing, medicine and psychology, and reflecting patient perspective were included. To capture the patients' cultural understanding of the implications of the disease and care, we developed an interlevel model indicating that self-experienced burden of disease and its visibility, personal conditions such as illness perception, and the patient's age at onset time are high-impact factors that should be addressed in future structured patient education programmes. The research on patient needs has hitherto focused on adults, but the problems and vulnerability associated with having a chronic and visible disease during adolescence must be acknowledged, and patient education initiatives designed for this young group are recommended. Hindawi Publishing Corporation 2012 2012-12-06 /pmc/articles/PMC3523575/ /pubmed/23304484 http://dx.doi.org/10.1155/2012/890860 Text en Copyright © 2012 Gitte Susanne Rasmussen et al. https://creativecommons.org/licenses/by/3.0/ This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Review Article
Rasmussen, Gitte Susanne
Maindal, Helle Terkildsen
Lomborg, Kirsten
Self-Management in Daily Life with Psoriasis: An Integrative Review of Patient Needs for Structured Education
title Self-Management in Daily Life with Psoriasis: An Integrative Review of Patient Needs for Structured Education
title_full Self-Management in Daily Life with Psoriasis: An Integrative Review of Patient Needs for Structured Education
title_fullStr Self-Management in Daily Life with Psoriasis: An Integrative Review of Patient Needs for Structured Education
title_full_unstemmed Self-Management in Daily Life with Psoriasis: An Integrative Review of Patient Needs for Structured Education
title_short Self-Management in Daily Life with Psoriasis: An Integrative Review of Patient Needs for Structured Education
title_sort self-management in daily life with psoriasis: an integrative review of patient needs for structured education
topic Review Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3523575/
https://www.ncbi.nlm.nih.gov/pubmed/23304484
http://dx.doi.org/10.1155/2012/890860
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