Cargando…
Developing a policy for paediatric biobanks: principles for good practice
The participation of minors in biobank research can offer great benefits for science and health care. However, as minors are a vulnerable population they are also in need of adequate protective measures when they are enrolled in research. Research using biobanked biological samples from children pos...
Autores principales: | Hens, Kristien, Van El, Carla E, Borry, Pascal, Cambon-Thomsen, Anne, Cornel, Martina C, Forzano, Francesca, Lucassen, Anneke, Patch, Christine, Tranebjaerg, Lisbeth, Vermeulen, Eric, Salvaterra, Elena, Tibben, Aad, Dierickx, Kris |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Nature Publishing Group
2013
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3533257/ https://www.ncbi.nlm.nih.gov/pubmed/22713814 http://dx.doi.org/10.1038/ejhg.2012.99 |
Ejemplares similares
-
Non-invasive prenatal testing for aneuploidy and beyond: challenges of responsible innovation in prenatal screening
por: Dondorp, Wybo, et al.
Publicado: (2015) -
Responsible implementation of expanded carrier screening
por: Henneman, Lidewij, et al.
Publicado: (2016) -
One small edit for humans, one giant edit for humankind? Points and questions to consider for a responsible way forward for gene editing in humans
por: Howard, Heidi C., et al.
Publicado: (2017) -
ESHG PPPC Comments on postmortem use of genetic data for research purposes
por: Fellmann, Florence, et al.
Publicado: (2019) -
European recommendations integrating genetic testing into multidisciplinary management of sudden cardiac death
por: Fellmann, Florence, et al.
Publicado: (2019)