Cargando…

Development of a health related quality of life questionnaire for adult patients with Primary Ciliary Dyskinesia

Detalles Bibliográficos
Autores principales:	Lucas, JS, Botting, NJ, DunnGalvin, A, Copeland, F
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2012
Materias:	Poster Presentation
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3555815/ http://dx.doi.org/10.1186/2046-2530-1-S1-P6

Ejemplares similares

Bronchial and alveolar airway nitric oxide levels in primary ciliary dyskinesia and other respiratory diseases
por: Walker, W, et al.
Publicado: (2012)

A quality-of-life measure for adults with primary ciliary dyskinesia: QOL–PCD
por: Lucas, Jane S., et al.
Publicado: (2015)

Diagnosing primary ciliary dyskinesia: an international patient perspective
por: Behan, Laura, et al.
Publicado: (2016)

Towards gene therapy for primary ciliary dyskinesia
por: Munye, M, et al.
Publicado: (2012)

Validation of a health-related quality of life instrument for primary ciliary dyskinesia (QOL-PCD)
por: Behan, Laura, et al.
Publicado: (2017)

The patient’s experience of primary ciliary dyskinesia: a systematic review
por: Behan, Laura, et al.
Publicado: (2017)

Primary ciliary dyskinesia and humoral immunodeficiency - what is the missing link?
por: Boon, Mieke, et al.
Publicado: (2013)

Longitudinal lung function and structural changes in children with primary ciliary dyskinesia
por: Blanchon, S, et al.
Publicado: (2012)

Nasal nitric oxide is useful in an Australian Primary Ciliary Dyskinesia clinic
por: Morgan, L, et al.
Publicado: (2012)

Diagnostic of Primary Ciliary Dyskinesia: guidelines to obtain appropriate ciliate cell samples
por: Blanchon, S, et al.
Publicado: (2012)

Mutations in CCDC39 and CCDC40 are a major cause of primary ciliary dyskinesia with microtubule disorganisation
por: Antony, D, et al.
Publicado: (2012)

Diagnostic algorithm for Primary Ciliary Dyskinesia: recommendations of the French National Centre for Rare Respiratory Diseases
por: Blanchon, S, et al.
Publicado: (2012)

Delineation of CCDC39/CCDC40 mutation spectrum and associated phenotypes in primary ciliary dyskinesia
por: Legendre, M, et al.
Publicado: (2012)

Nasal exhaled nitric oxide measurements on British Asian children with confirmed Primary Ciliary Dyskinesia
por: Turner, E, et al.
Publicado: (2012)

Phenotypic variability of CCDC103 mutation in British Pakistani children with Primary Ciliary Dyskinesia (PCD)
por: Robson, E, et al.
Publicado: (2015)

Translation of the quality of life questionnaire for primary ciliary dyskinesia (QOL‐PCD) into Hebrew: The Israeli experience
por: Amirav, Israel, et al.
Publicado: (2022)

Quantitative analysis of ciliary beating in primary ciliary dyskinesia: a pilot study
por: Papon, J-F, et al.
Publicado: (2012)

Health related quality of life in adult primary Ciliary dyskinesia patients in Cyprus: development and validation of the Greek version of the QOL-PCD questionnaire
por: Ioannou, Phivos, et al.
Publicado: (2020)

O049 Sleep quality and its impact on children with primary ciliary dyskinesia
por: Ewert, I, et al.
Publicado: (2021)

Gene discovery for motile cilia disorders: mutation spectrum in primary ciliary dyskinesia and discovery of mutations in CCDC151
por: Onoufriadis, A, et al.
Publicado: (2015)

Translation of the quality-of-life measure for adults with primary ciliary dyskinesia and its application in patients in Brazil
por: de Queiroz, Ana Paula Lima, et al.
Publicado: (2019)

Immunofluorescence microscopy (IFM) analysis of primary ciliary dyskinesia (PCD) patients with suspected inner dynein arm defects (IDA)
por: Hjeij, R, et al.
Publicado: (2012)

Mutations in the dynein assembly factor PF22 (DNAAF3) cause primary ciliary dyskinesia with absent dynein arms
por: Schmidts, M, et al.
Publicado: (2012)

Diagnosis and management of primary ciliary dyskinesia
por: Lucas, Jane S, et al.
Publicado: (2014)

Diagnosis of primary ciliary dyskinesia
por: Olm, Mary Anne Kowal, et al.
Publicado: (2015)

Perspectives for Primary Ciliary Dyskinesia
por: Bukowy-Bieryllo, Zuzanna, et al.
Publicado: (2022)

Translation and cultural adaptation to Portuguese of Food Allergy Quality of Life Questionnaire-Parent Form (FAQLQ-PF)
por: Couto, Mariana, et al.
Publicado: (2015)

The Controversies and Difficulties of Diagnosing Primary Ciliary Dyskinesia
por: Shoemark, Amelia, et al.
Publicado: (2020)

Deriving health utility indices from a food allergy quality‐of‐life questionnaire
por: Chen, Gang, et al.
Publicado: (2021)

Ciliary beat pattern analysis below 37°C may risk PCD misdiagnosis
por: Jackson, C, et al.
Publicado: (2012)

COVID-19 Vaccinations: Perceptions and Behaviours in People with Primary Ciliary Dyskinesia
por: Pedersen, Eva S. L., et al.
Publicado: (2021)

Accuracy of diagnostic testing in primary ciliary dyskinesia
por: Jackson, Claire L., et al.
Publicado: (2016)

Diagnosis and management of primary ciliary dyskinesia
por: Werner, Claudius, et al.
Publicado: (2015)

Primary ciliary dyskinesia: mechanisms and management
por: Damseh, Nadirah, et al.
Publicado: (2017)

Mucus Plugging in Primary Ciliary Dyskinesia
por: Adaikalam, Stephanie, et al.
Publicado: (2023)

Incidence and Severity of SARS-CoV-2 Infections in People With Primary Ciliary Dyskinesia
por: Pedersen, Eva S. L., et al.
Publicado: (2023)

Aerobic Fitness in Children and Young Adults with Primary Ciliary Dyskinesia
por: Madsen, Astrid, et al.
Publicado: (2013)

The patient’s perspective on precautionary labelling
por: DunnGalvin, Audrey
Publicado: (2011)

Whole genome sequencing in the diagnosis of primary ciliary dyskinesia
por: Wheway, Gabrielle, et al.
Publicado: (2021)

Anxiety and depression in Dutch patients with primary ciliary dyskinesia and their caregivers: associations with health-related quality of life
por: Verkleij, Marieke, et al.
Publicado: (2021)

Cannot write session to /tmp/vufind_sessions/sess_ci5jnku8inll7icutq0dt0i2ra