Implementation of a population-based epidemiological rare disease registry: study protocol of the amyotrophic lateral sclerosis (ALS) - registry Swabia

BACKGROUND: The social and medical impact of rare diseases is increasingly recognized. Amyotrophic lateral sclerosis (ALS) is the most prevalent of the motor neuron diseases. It is characterized by rapidly progressive damage to the motor neurons with a survival of 2–5 years for the majority of patie...

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Detalles Bibliográficos
Autores principales: Nagel, Gabriele, Ünal, Hatice, Rosenbohm, Angela, Ludolph, Albert C, Rothenbacher, Dietrich
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2013
Materias:
Study Protocol
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3582473/
https://www.ncbi.nlm.nih.gov/pubmed/23414001
http://dx.doi.org/10.1186/1471-2377-13-22

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