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The effect of family-centered empowerment model on quality of life of school–aged children with thalassemia major

BACKGROUND: Chronic nature of thalassemia causes changes in different aspects of life in patients, including their quality of life. Because of the important role of family in caring for children with thalassemia, this study was done to evaluate the effect of family-centered empowerment model on qual...

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Autores principales: Borhani, Fariba, Najafi, Maral Kargar, Rabori, Eshaq Dortaj, Sabzevari, Sakkineh
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Medknow Publications & Media Pvt Ltd 2011
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3583099/
https://www.ncbi.nlm.nih.gov/pubmed/23450080
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author Borhani, Fariba
Najafi, Maral Kargar
Rabori, Eshaq Dortaj
Sabzevari, Sakkineh
author_facet Borhani, Fariba
Najafi, Maral Kargar
Rabori, Eshaq Dortaj
Sabzevari, Sakkineh
author_sort Borhani, Fariba
collection PubMed
description BACKGROUND: Chronic nature of thalassemia causes changes in different aspects of life in patients, including their quality of life. Because of the important role of family in caring for children with thalassemia, this study was done to evaluate the effect of family-centered empowerment model on quality of life of the children aged 6-12 years with thalassemia in Kerman Thalassemia Center. METHODS: The present experimental study was carried out on 86 thalassemic children aged 6-12 years who were randomly divided into case and control groups. Data collection tools consisted of demographic and general quality of life questionnaires in children that included physical, emotional and social aspects in addition to school functions. The questionnaires were used after determination of content validity and reliability by internal correlation method. This model was performed in test group according to four steps (threat perception, problem solving, educational participation and evaluation). Quality of life was measured 1.5 months after the intervention. RESULTS: The results showed that the average quality of life of thalassemic children before the intervention was 26.23 in test group and 27.62 in the control group and they were not significantly different (p > 0.05). However after performing the model, the average quality of life in the test group reached 35.19 while it was 28.02 in control group and the observed difference was statistically significant (p < 0.05). CONCLUSIONS: According to the impact of this model on quality of life in thalassemic children, it is recommended that evaluating the effectiveness of this model should be considered in further studies of other ages and other chronic diseases.
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spelling pubmed-35830992013-02-28 The effect of family-centered empowerment model on quality of life of school–aged children with thalassemia major Borhani, Fariba Najafi, Maral Kargar Rabori, Eshaq Dortaj Sabzevari, Sakkineh Iran J Nurs Midwifery Res Original Article BACKGROUND: Chronic nature of thalassemia causes changes in different aspects of life in patients, including their quality of life. Because of the important role of family in caring for children with thalassemia, this study was done to evaluate the effect of family-centered empowerment model on quality of life of the children aged 6-12 years with thalassemia in Kerman Thalassemia Center. METHODS: The present experimental study was carried out on 86 thalassemic children aged 6-12 years who were randomly divided into case and control groups. Data collection tools consisted of demographic and general quality of life questionnaires in children that included physical, emotional and social aspects in addition to school functions. The questionnaires were used after determination of content validity and reliability by internal correlation method. This model was performed in test group according to four steps (threat perception, problem solving, educational participation and evaluation). Quality of life was measured 1.5 months after the intervention. RESULTS: The results showed that the average quality of life of thalassemic children before the intervention was 26.23 in test group and 27.62 in the control group and they were not significantly different (p > 0.05). However after performing the model, the average quality of life in the test group reached 35.19 while it was 28.02 in control group and the observed difference was statistically significant (p < 0.05). CONCLUSIONS: According to the impact of this model on quality of life in thalassemic children, it is recommended that evaluating the effectiveness of this model should be considered in further studies of other ages and other chronic diseases. Medknow Publications & Media Pvt Ltd 2011 /pmc/articles/PMC3583099/ /pubmed/23450080 Text en Copyright: © Iranian Journal of Nursing and Midwifery Research http://creativecommons.org/licenses/by-nc-sa/3.0 This is an open-access article distributed under the terms of the Creative Commons Attribution-Noncommercial-Share Alike 3.0 Unported, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Article
Borhani, Fariba
Najafi, Maral Kargar
Rabori, Eshaq Dortaj
Sabzevari, Sakkineh
The effect of family-centered empowerment model on quality of life of school–aged children with thalassemia major
title The effect of family-centered empowerment model on quality of life of school–aged children with thalassemia major
title_full The effect of family-centered empowerment model on quality of life of school–aged children with thalassemia major
title_fullStr The effect of family-centered empowerment model on quality of life of school–aged children with thalassemia major
title_full_unstemmed The effect of family-centered empowerment model on quality of life of school–aged children with thalassemia major
title_short The effect of family-centered empowerment model on quality of life of school–aged children with thalassemia major
title_sort effect of family-centered empowerment model on quality of life of school–aged children with thalassemia major
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3583099/
https://www.ncbi.nlm.nih.gov/pubmed/23450080
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