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Design and process evaluation of an informative website tailored to breast cancer survivors’ and intimate partners’ post-treatment care needs

BACKGROUND: On-line provision of information during the transition phase after treatment carries great promise in meeting shortcomings in post-treatment care for breast cancer survivors and their partners. The objectives of this study are to describe the development and process evaluation of a tailo...

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Autores principales: Pauwels, Evelyn, Van Hoof, Elke, Charlier, Caroline, Lechner, Lilian, De Bourdeaudhuij, Ilse
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2012
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3583797/
https://www.ncbi.nlm.nih.gov/pubmed/23034161
http://dx.doi.org/10.1186/1756-0500-5-548
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author Pauwels, Evelyn
Van Hoof, Elke
Charlier, Caroline
Lechner, Lilian
De Bourdeaudhuij, Ilse
author_facet Pauwels, Evelyn
Van Hoof, Elke
Charlier, Caroline
Lechner, Lilian
De Bourdeaudhuij, Ilse
author_sort Pauwels, Evelyn
collection PubMed
description BACKGROUND: On-line provision of information during the transition phase after treatment carries great promise in meeting shortcomings in post-treatment care for breast cancer survivors and their partners. The objectives of this study are to describe the development and process evaluation of a tailored informative website and to assess which characteristics of survivors and partners, participating in the feasibility study, are related to visiting the website. METHODS: The development process included quantitative and qualitative assessments of survivors’ and partners’ care needs and preferences. Participants’ use and evaluation of the website were explored by conducting baseline and post-measurements. During the intervening 10–12 weeks 57 survivors and 28 partners were granted access to the website. RESULTS: Fifty-seven percent (n=21) of survivors who took part in the post-measurement indicated that they had visited the website. Compared to non-visitors (n=16), they were more likely to have a partner and a higher income, reported higher levels of self-esteem and had completed treatment for a longer period of time. Partners who consulted the on-line information (42%, n=8) were younger and reported lower levels of social support compared to partners who did not visit the website (n=11). Visitors generally evaluated the content and lay-out positively, yet some believed the information was incomplete and impersonal. CONCLUSIONS: The website reached only about half of survivors and partners, yet was mostly well-received. Besides other ways of providing information and support, a website containing clear-cut and tailored information could be a useful tool in post-treatment care provision.
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spelling pubmed-35837972013-02-28 Design and process evaluation of an informative website tailored to breast cancer survivors’ and intimate partners’ post-treatment care needs Pauwels, Evelyn Van Hoof, Elke Charlier, Caroline Lechner, Lilian De Bourdeaudhuij, Ilse BMC Res Notes Research Article BACKGROUND: On-line provision of information during the transition phase after treatment carries great promise in meeting shortcomings in post-treatment care for breast cancer survivors and their partners. The objectives of this study are to describe the development and process evaluation of a tailored informative website and to assess which characteristics of survivors and partners, participating in the feasibility study, are related to visiting the website. METHODS: The development process included quantitative and qualitative assessments of survivors’ and partners’ care needs and preferences. Participants’ use and evaluation of the website were explored by conducting baseline and post-measurements. During the intervening 10–12 weeks 57 survivors and 28 partners were granted access to the website. RESULTS: Fifty-seven percent (n=21) of survivors who took part in the post-measurement indicated that they had visited the website. Compared to non-visitors (n=16), they were more likely to have a partner and a higher income, reported higher levels of self-esteem and had completed treatment for a longer period of time. Partners who consulted the on-line information (42%, n=8) were younger and reported lower levels of social support compared to partners who did not visit the website (n=11). Visitors generally evaluated the content and lay-out positively, yet some believed the information was incomplete and impersonal. CONCLUSIONS: The website reached only about half of survivors and partners, yet was mostly well-received. Besides other ways of providing information and support, a website containing clear-cut and tailored information could be a useful tool in post-treatment care provision. BioMed Central 2012-10-03 /pmc/articles/PMC3583797/ /pubmed/23034161 http://dx.doi.org/10.1186/1756-0500-5-548 Text en Copyright © 2012 Pauwels et al.; licensee BioMed Central Ltd. http://creativecommons.org/licenses/by/2.0 This is an Open Access article distributed under the terms of the Creative Commons Attribution License ( http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Research Article
Pauwels, Evelyn
Van Hoof, Elke
Charlier, Caroline
Lechner, Lilian
De Bourdeaudhuij, Ilse
Design and process evaluation of an informative website tailored to breast cancer survivors’ and intimate partners’ post-treatment care needs
title Design and process evaluation of an informative website tailored to breast cancer survivors’ and intimate partners’ post-treatment care needs
title_full Design and process evaluation of an informative website tailored to breast cancer survivors’ and intimate partners’ post-treatment care needs
title_fullStr Design and process evaluation of an informative website tailored to breast cancer survivors’ and intimate partners’ post-treatment care needs
title_full_unstemmed Design and process evaluation of an informative website tailored to breast cancer survivors’ and intimate partners’ post-treatment care needs
title_short Design and process evaluation of an informative website tailored to breast cancer survivors’ and intimate partners’ post-treatment care needs
title_sort design and process evaluation of an informative website tailored to breast cancer survivors’ and intimate partners’ post-treatment care needs
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3583797/
https://www.ncbi.nlm.nih.gov/pubmed/23034161
http://dx.doi.org/10.1186/1756-0500-5-548
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