Clinical pathways for inborn errors of metabolism: warranted and feasible

Inborn errors of metabolism (IEMs) are known for their low prevalence and multidisciplinary care mostly founded on expert opinion. Clinical pathways are multidisciplinary tools to organise care which provide a clear route to the best care and improve communication. In 2010 the Dutch Society for Chil...

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Autores principales: Demirdas, Serwet, van Kessel, Imke N, Korndewal, Marjolein J, Hollak, Carla EM, Meutgeert, Hanka, Klaren, Anja, van Rijn, Margreet, van Spronsen, Francjan J, Bosch, Annet M
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2013
Materias:
Letter to the Editor
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3584952/
https://www.ncbi.nlm.nih.gov/pubmed/23442887
http://dx.doi.org/10.1186/1750-1172-8-37
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author Demirdas, Serwet
van Kessel, Imke N
Korndewal, Marjolein J
Hollak, Carla EM
Meutgeert, Hanka
Klaren, Anja
van Rijn, Margreet
van Spronsen, Francjan J
Bosch, Annet M
author_facet Demirdas, Serwet
van Kessel, Imke N
Korndewal, Marjolein J
Hollak, Carla EM
Meutgeert, Hanka
Klaren, Anja
van Rijn, Margreet
van Spronsen, Francjan J
Bosch, Annet M
author_sort Demirdas, Serwet
collection PubMed
description Inborn errors of metabolism (IEMs) are known for their low prevalence and multidisciplinary care mostly founded on expert opinion. Clinical pathways are multidisciplinary tools to organise care which provide a clear route to the best care and improve communication. In 2010 the Dutch Society for Children and Adults with an Inborn Error of Metabolism (VKS) initiated development of clinical pathways for inborn errors of metabolism. In this letter to the editor we describe why it is warranted to develop clinical pathways for IEMs and shortly discuss the process of development for these pathways in the Netherlands.
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spelling pubmed-35849522013-03-02 Clinical pathways for inborn errors of metabolism: warranted and feasible Demirdas, Serwet van Kessel, Imke N Korndewal, Marjolein J Hollak, Carla EM Meutgeert, Hanka Klaren, Anja van Rijn, Margreet van Spronsen, Francjan J Bosch, Annet M Orphanet J Rare Dis Letter to the Editor Inborn errors of metabolism (IEMs) are known for their low prevalence and multidisciplinary care mostly founded on expert opinion. Clinical pathways are multidisciplinary tools to organise care which provide a clear route to the best care and improve communication. In 2010 the Dutch Society for Children and Adults with an Inborn Error of Metabolism (VKS) initiated development of clinical pathways for inborn errors of metabolism. In this letter to the editor we describe why it is warranted to develop clinical pathways for IEMs and shortly discuss the process of development for these pathways in the Netherlands. BioMed Central 2013-02-25 /pmc/articles/PMC3584952/ /pubmed/23442887 http://dx.doi.org/10.1186/1750-1172-8-37 Text en Copyright ©2013 Demirdas et al; licensee BioMed Central Ltd. http://creativecommons.org/licenses/by/2.0 This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Letter to the Editor
Demirdas, Serwet
van Kessel, Imke N
Korndewal, Marjolein J
Hollak, Carla EM
Meutgeert, Hanka
Klaren, Anja
van Rijn, Margreet
van Spronsen, Francjan J
Bosch, Annet M
Clinical pathways for inborn errors of metabolism: warranted and feasible
title Clinical pathways for inborn errors of metabolism: warranted and feasible
title_full Clinical pathways for inborn errors of metabolism: warranted and feasible
title_fullStr Clinical pathways for inborn errors of metabolism: warranted and feasible
title_full_unstemmed Clinical pathways for inborn errors of metabolism: warranted and feasible
title_short Clinical pathways for inborn errors of metabolism: warranted and feasible
title_sort clinical pathways for inborn errors of metabolism: warranted and feasible
topic Letter to the Editor
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3584952/
https://www.ncbi.nlm.nih.gov/pubmed/23442887
http://dx.doi.org/10.1186/1750-1172-8-37
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