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A Patient-Based Needs Assessment for Living Well with Parkinson Disease: Implementation via Nominal Group Technique

Background. Parkinson's disease (PD) is a neurodegenerative condition with complex subtleties, making it challenging for physicians to fully inform their patients. Given that approximately 50% of Americans access the Internet for health information, the development of a multimedia, web-based ap...

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Detalles Bibliográficos
Autores principales: Kleiner-Fisman, Galit, Gryfe, Pearl, Naglie, Gary
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Hindawi Publishing Corporation 2013
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3588173/
https://www.ncbi.nlm.nih.gov/pubmed/23476891
http://dx.doi.org/10.1155/2013/974964
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author Kleiner-Fisman, Galit
Gryfe, Pearl
Naglie, Gary
author_facet Kleiner-Fisman, Galit
Gryfe, Pearl
Naglie, Gary
author_sort Kleiner-Fisman, Galit
collection PubMed
description Background. Parkinson's disease (PD) is a neurodegenerative condition with complex subtleties, making it challenging for physicians to fully inform their patients. Given that approximately 50% of Americans access the Internet for health information, the development of a multimedia, web-based application emphasizing targeted needs of people with Parkinson's disease (PwP) has the potential to change patient's lives. Objectives. To determine what information PwP perceive could enhance their quality of life. Methods. Group sessions utilizing nominal group technique (NGT) were conducted. Participants were asked “what information do you want to know about that would help you live well with PD?” Silent generation of ideas preceded discussion followed by anonymous ranking of items. A “summary score” (sum of rank × frequency) was calculated. Results. 36 individual items were collapsed into 9 categories. Coping with emotions, changing relationships, and social implications of PD were ranked as most important. Financial supports and skills for self-advocacy were also highly ranked. Conclusions. Qualitative research methodology was utilized to determine the unmet needs of PwP. Results of this survey will inform the development of a patient-oriented, online resource, the goal will be to provide information and strategies to improve symptom management, reduce disability and address all relevant concerns important to those affected by PD.
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spelling pubmed-35881732013-03-09 A Patient-Based Needs Assessment for Living Well with Parkinson Disease: Implementation via Nominal Group Technique Kleiner-Fisman, Galit Gryfe, Pearl Naglie, Gary Parkinsons Dis Research Article Background. Parkinson's disease (PD) is a neurodegenerative condition with complex subtleties, making it challenging for physicians to fully inform their patients. Given that approximately 50% of Americans access the Internet for health information, the development of a multimedia, web-based application emphasizing targeted needs of people with Parkinson's disease (PwP) has the potential to change patient's lives. Objectives. To determine what information PwP perceive could enhance their quality of life. Methods. Group sessions utilizing nominal group technique (NGT) were conducted. Participants were asked “what information do you want to know about that would help you live well with PD?” Silent generation of ideas preceded discussion followed by anonymous ranking of items. A “summary score” (sum of rank × frequency) was calculated. Results. 36 individual items were collapsed into 9 categories. Coping with emotions, changing relationships, and social implications of PD were ranked as most important. Financial supports and skills for self-advocacy were also highly ranked. Conclusions. Qualitative research methodology was utilized to determine the unmet needs of PwP. Results of this survey will inform the development of a patient-oriented, online resource, the goal will be to provide information and strategies to improve symptom management, reduce disability and address all relevant concerns important to those affected by PD. Hindawi Publishing Corporation 2013 2013-02-17 /pmc/articles/PMC3588173/ /pubmed/23476891 http://dx.doi.org/10.1155/2013/974964 Text en Copyright © 2013 Galit Kleiner-Fisman et al. https://creativecommons.org/licenses/by/3.0/ This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Research Article
Kleiner-Fisman, Galit
Gryfe, Pearl
Naglie, Gary
A Patient-Based Needs Assessment for Living Well with Parkinson Disease: Implementation via Nominal Group Technique
title A Patient-Based Needs Assessment for Living Well with Parkinson Disease: Implementation via Nominal Group Technique
title_full A Patient-Based Needs Assessment for Living Well with Parkinson Disease: Implementation via Nominal Group Technique
title_fullStr A Patient-Based Needs Assessment for Living Well with Parkinson Disease: Implementation via Nominal Group Technique
title_full_unstemmed A Patient-Based Needs Assessment for Living Well with Parkinson Disease: Implementation via Nominal Group Technique
title_short A Patient-Based Needs Assessment for Living Well with Parkinson Disease: Implementation via Nominal Group Technique
title_sort patient-based needs assessment for living well with parkinson disease: implementation via nominal group technique
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3588173/
https://www.ncbi.nlm.nih.gov/pubmed/23476891
http://dx.doi.org/10.1155/2013/974964
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