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Users and providers collaborate to develop self-management resources

PURPOSE: This 2009–11 national project engaged Canadians affected by hepatitis C, a complex chronic illness, and health and social service providers in the development of resources to assist affected individuals learn how to identify and discuss their needs with care providers, navigate complex serv...

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Detalles Bibliográficos
Autores principales: Butt, Gail, McGuinness, Liza
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Igitur publishing 2012
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3617735/
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author Butt, Gail
McGuinness, Liza
author_facet Butt, Gail
McGuinness, Liza
author_sort Butt, Gail
collection PubMed
description PURPOSE: This 2009–11 national project engaged Canadians affected by hepatitis C, a complex chronic illness, and health and social service providers in the development of resources to assist affected individuals learn how to identify and discuss their needs with care providers, navigate complex service systems, and improve their self-care. THEORY AND METHODS: A collaborative and cyclical approach was used to incorporate varied perspectives in the development and implementation of learning materials. Multiple communication modes were used to work effectively with diverse and geographically dispersed stakeholder participants. Stakeholders volunteered their time and made decisions by consensus. RESULTS AND CONCLUSIONS: A national stakeholder network with 470 participants emerged. Culturally appropriate self-learning resources were created for and with three distinct groups, English, French and Aboriginal. Materials included booklets, posters, and pocket cards available in print and electronic versions including an audio version of key messages. Materials were disseminated through the stakeholder network in multiple ways e.g. stakeholders planned 34 knowledge exchange events where 3366 booklets were distributed. Material’s evaluations were positive and content was considered appropriate to other chronic illnesses. Uptake of materials surpassed expectations demonstrating that a geographically dispersed network can function effectively to support the learning needs of people living with a complex chronic illness.
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spelling pubmed-36177352013-04-16 Users and providers collaborate to develop self-management resources Butt, Gail McGuinness, Liza Int J Integr Care Poster Abstract PURPOSE: This 2009–11 national project engaged Canadians affected by hepatitis C, a complex chronic illness, and health and social service providers in the development of resources to assist affected individuals learn how to identify and discuss their needs with care providers, navigate complex service systems, and improve their self-care. THEORY AND METHODS: A collaborative and cyclical approach was used to incorporate varied perspectives in the development and implementation of learning materials. Multiple communication modes were used to work effectively with diverse and geographically dispersed stakeholder participants. Stakeholders volunteered their time and made decisions by consensus. RESULTS AND CONCLUSIONS: A national stakeholder network with 470 participants emerged. Culturally appropriate self-learning resources were created for and with three distinct groups, English, French and Aboriginal. Materials included booklets, posters, and pocket cards available in print and electronic versions including an audio version of key messages. Materials were disseminated through the stakeholder network in multiple ways e.g. stakeholders planned 34 knowledge exchange events where 3366 booklets were distributed. Material’s evaluations were positive and content was considered appropriate to other chronic illnesses. Uptake of materials surpassed expectations demonstrating that a geographically dispersed network can function effectively to support the learning needs of people living with a complex chronic illness. Igitur publishing 2012-09-04 /pmc/articles/PMC3617735/ Text en Copyright 2012, International Journal of Integrated Care (IJIC) http://creativecommons.org/licenses/by/3.0/ This work is licensed under a (http://creativecommons.org/licenses/by/3.0) Creative Commons Attribution 3.0 Unported License
spellingShingle Poster Abstract
Butt, Gail
McGuinness, Liza
Users and providers collaborate to develop self-management resources
title Users and providers collaborate to develop self-management resources
title_full Users and providers collaborate to develop self-management resources
title_fullStr Users and providers collaborate to develop self-management resources
title_full_unstemmed Users and providers collaborate to develop self-management resources
title_short Users and providers collaborate to develop self-management resources
title_sort users and providers collaborate to develop self-management resources
topic Poster Abstract
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3617735/
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