Prioritization of therapy uncertainties in Dystrophic Epidermolysis Bullosa: where should research direct to? an example of priority setting partnership in very rare disorders

BACKGROUND: Dystrophic Epidermolysis Bullosa (DEB) is a rare genodermatosis (7 cases per million) that causes blisters and erosions with minor trauma in skin and mucosa, and other systemic complications. A recently updated systematic review showed that the research evidence about DEB therapies is po...

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Detalles Bibliográficos
Autores principales: Davila-Seijo, Paula, Hernández-Martín, Angela, Morcillo-Makow, Evanina, Lucas, Raúl de, Domínguez, Esther, Romero, Natividad, Monrós, Eva, Feito, Marta, Carretero, Luis, Aranegui, Bea, García-Doval, Ignacio
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2013
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3637279/
https://www.ncbi.nlm.nih.gov/pubmed/23607806
http://dx.doi.org/10.1186/1750-1172-8-61

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