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Yet they failed to do so: recommendations based on the experiences of NAOMI research survivors and a call for action

BACKGROUND: This article highlights the experiences of a unique group. In January 2011, Dave Murray organized a group of participants from the North American Opiate Medication Initiative (NAOMI) heroin-assisted treatment clinical trials from 2005 to 2008 in the Downtown Eastside of Vancouver (DTES),...

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Detalles Bibliográficos
Autores principales: Boyd, Susan, NAOMI Patients Association
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2013
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3646696/
https://www.ncbi.nlm.nih.gov/pubmed/23594923
http://dx.doi.org/10.1186/1477-7517-10-6
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author Boyd, Susan
NAOMI Patients Association
author_facet Boyd, Susan
NAOMI Patients Association
author_sort Boyd, Susan
collection PubMed
description BACKGROUND: This article highlights the experiences of a unique group. In January 2011, Dave Murray organized a group of participants from the North American Opiate Medication Initiative (NAOMI) heroin-assisted treatment clinical trials from 2005 to 2008 in the Downtown Eastside of Vancouver (DTES), B.C., Canada. The NAOMI Patients Association (NPA) is an independent group that currently meets every Saturday in the DTES. Currently, all members of the NPA are former participants in the heroin stream of the clinical trial. The NPA offers support, education, and advocacy to its members. METHODS: Drawing on brainstorming sessions and focus groups that were conducted in the summer of 2011, this paper highlights the experiences of NPA members in their own words. RESULTS: The findings provide a lens to understand how becoming a research subject for the NAOMI trial impacted the lives of NPA members, both positive and negative. The NPA members discuss ethics, consent, recommendations for future HAT programs and studies, and ongoing advocacy.
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spelling pubmed-36466962013-05-08 Yet they failed to do so: recommendations based on the experiences of NAOMI research survivors and a call for action Boyd, Susan NAOMI Patients Association Harm Reduct J Research BACKGROUND: This article highlights the experiences of a unique group. In January 2011, Dave Murray organized a group of participants from the North American Opiate Medication Initiative (NAOMI) heroin-assisted treatment clinical trials from 2005 to 2008 in the Downtown Eastside of Vancouver (DTES), B.C., Canada. The NAOMI Patients Association (NPA) is an independent group that currently meets every Saturday in the DTES. Currently, all members of the NPA are former participants in the heroin stream of the clinical trial. The NPA offers support, education, and advocacy to its members. METHODS: Drawing on brainstorming sessions and focus groups that were conducted in the summer of 2011, this paper highlights the experiences of NPA members in their own words. RESULTS: The findings provide a lens to understand how becoming a research subject for the NAOMI trial impacted the lives of NPA members, both positive and negative. The NPA members discuss ethics, consent, recommendations for future HAT programs and studies, and ongoing advocacy. BioMed Central 2013-04-18 /pmc/articles/PMC3646696/ /pubmed/23594923 http://dx.doi.org/10.1186/1477-7517-10-6 Text en Copyright © 2013 Boyd and NAOMI Patients Association; licensee BioMed Central Ltd. http://creativecommons.org/licenses/by/2.0 This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Research
Boyd, Susan
NAOMI Patients Association
Yet they failed to do so: recommendations based on the experiences of NAOMI research survivors and a call for action
title Yet they failed to do so: recommendations based on the experiences of NAOMI research survivors and a call for action
title_full Yet they failed to do so: recommendations based on the experiences of NAOMI research survivors and a call for action
title_fullStr Yet they failed to do so: recommendations based on the experiences of NAOMI research survivors and a call for action
title_full_unstemmed Yet they failed to do so: recommendations based on the experiences of NAOMI research survivors and a call for action
title_short Yet they failed to do so: recommendations based on the experiences of NAOMI research survivors and a call for action
title_sort yet they failed to do so: recommendations based on the experiences of naomi research survivors and a call for action
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3646696/
https://www.ncbi.nlm.nih.gov/pubmed/23594923
http://dx.doi.org/10.1186/1477-7517-10-6
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